2 ms·

I can relate.. I also have a chronic illness, with the gloriously vague name of fibromyalgia. I have had doctors tell me there was nothing wrong with me, accuse

I can relate.. I also have a chronic illness, with the gloriously vague name of fibromyalgia. I have had doctors tell me there was nothing wrong with me, accuse me of being a drug addict, lazy, etc etc. What fun. Have spent since 2008 doing my own research (with generous amounts of help from my wife and friends). I have discovered that I am in a club that I don't want to be in, the chronic pain and fatigue club. I have to plan what days I exert myself on, because I know that the next few days will be spent in bed, unable to move. Gives me plenty of time to think, haha. "you should exercise more" is the least helpful advice, which I get all the time. People mean well, but they don't understand. It gives me an opportunity to reflect on when I do the same to others, when I mean well but don't understand.

ahoyhere 13y ago
Yes, I have fibromyalgia too. I consider it a non-diagnosis (like chronic fatigue syndrome, which may or may not be the same thing, but which I (also?) have). It doesn't tell you causes it or how to get better, or what it really is. So. On most days, I'm much better than I described above. What really helped me is the protocol in the book _From Fatigued to Fantastic_. If you haven't read it, haven't tried his approach to fixing sleep and other imbalances, I CANNOT ENCOURAGE YOU MORE to check it out. The trazodone alone changed my life. Plus the magnesium, the B vitamin supplements, (sometimes) the adrenal supplements, heavily supplementing electrolytes with electrolyte pills (that's my addition)… these took me from being non-functional, unable to discuss facts or details or make decisions, or go further than the sofa, to being able to go out, see people, do things (with limits). This week I've started naturthroid to support my normal-testing thyroid. So far it seems to be working. I have hope that it will stop the "crashing." Hope you feel better.

ahoyhere 13y ago

Yes, I have fibromyalgia too. I consider it a non-diagnosis (like chronic fatigue syndrome, which may or may not be the same thing, but which I (also?) have). It doesn't tell you causes it or how to get better, or what it really is. So. On most days, I'm much better than I described above. What really helped me is the protocol in the book _From Fatigued to Fantastic_. If you haven't read it, haven't tried his approach to fixing sleep and other imbalances, I CANNOT ENCOURAGE YOU MORE to check it out. The trazodone alone changed my life. Plus the magnesium, the B vitamin supplements, (sometimes) the adrenal supplements, heavily supplementing electrolytes with electrolyte pills (that's my addition)… these took me from being non-functional, unable to discuss facts or details or make decisions, or go further than the sofa, to being able to go out, see people, do things (with limits). This week I've started naturthroid to support my normal-testing thyroid. So far it seems to be working. I have hope that it will stop the "crashing." Hope you feel better.