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It's not insane that progress is being made -- that's pretty sensible (because more guinea pigs = more data, and in normal circumstances patients don't voluntee
by jtheory 14y ago
It's not insane that progress is being made -- that's pretty sensible (because more guinea pigs = more data, and in normal circumstances patients don't volunteer for more dangerous paths). Deciding to be the guinea pigs is... well, not insane (people simply don't behave logically much at all, for religious as well as non-religious reasons), but sure, somewhat foolish.
In this case, JWs are presenting themselves as the control group for experimenting with blood transfusions... in a "study" that would be utterly unethical.
Imagine a doctor that refused a blood transfusion that would normally be called for in a serious surgery, because the patient was part of a study and fell into the "no transfusions even in dire need" group.
A randomized study like that is (still) impossible and unethical, but because we have this group of people who place themselves onto the higher-risk path, doctors can test out the actual boundaries of where transfusions are needed -- and indeed, seriously advance the science.
The Jehovah's Witnesses are at higher risk, and more of them will die because of this decision, but we're getting quite useful data in the meantime.
You mentioned the Army -- medicine is also advanced by the normally-unethical medical approaches to medicine that are required by battlefield medicine. There's some overlap with the real requirements there, and the self-imposed requirement of JWs refusing transfusions that actually are available -- so certainly they'd be interested.
Now we just need a new L Ron Hubbard to invent a religion that requires adherents to go all the way -- and always take the most-data-rich path through medical treatment -- then we'll be making progress in leaps & bounds (though of course more guinea pigs will die along the way).
- kbenson 14y ago> The Jehovah's Witnesses are at higher risk, and more of them will die because of this decision, but we're getting quite useful data in the meantime. The article mentions that there's some evidence that transfusions carry their own risk. How closely has this been studied, and what are the risks? Without accurate knowledge of that, how can we make definitive statements as to the negative repercussions to people that opt out of transfusions? Additionally, I fail to see how more Jehovah's Witnesses die because of this decision, which allows the operation to continue, when the alternative is that they don't get the procedure at all, which I believe results in death?
- jtheory 14y agoBecause of their decision, certainly more will die that could have lived. The grey area, where getting a transfusion might actually be riskier than not getting one, is what they're finding out more about. That's useful to know. There are also cases that are not at all grey areas, where refusing transfusions means they will die. They're still refusing them (and unfortunately, that death doesn't provide any useful data, beyond "yes, what we were sure would happen, happened").