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"No one wants my "cure"* for cystic fibrosis. * Not a cure, a means to be healthy in spite of the defect. Quibbling detail which everyone misses." Your confid
by illuminate 14y ago
"No one wants my "cure"* for cystic fibrosis.
* Not a cure, a means to be healthy in spite of the defect. Quibbling detail which everyone misses."
Your confidence in your anecdotes and bitterness that they're not taken as fact may be seen as offputting. Try understanding why people may listen to your experiences and not see them as an immediate path to follow.
Regardless of whether your "methods" are sound or not, there have been and are plenty of well-meaning and sincere quacks throughout history and certainly today, complaining that you are entitled to respect for having these hypotheses isn't going to swing anybody your way who doesn't already believe as you do.
- Mz 14y agoI am curious why you feel the need to hound me and repeatedly use terminology like "quack". That is generally not socially acceptable behavior. No one else on HN does this to me. I wish you would stop. It isn't likely to accomplish anything constructive.
- illuminate 14y agoI'm saying that a change of tact is required if you're experiencing hostility from the communities you wish to draw readers from. Realizing and working around these preconceptions will be essential. I use the phrase "quack" because these people exist in large number on the internet, and there certainly exist people who offer promises to the disabled community that they are not capable of delivering on. There's a very large burden of proof that many persons would wish to meet to take a hypothesis seriously. This isn't fanfiction, this isn't diet tips to swap, this, if real, would be a lot of promise to people. Sarcastic comments about the people who don't believe you implicitly are unnecessary, there are very real reasons why these barriers to belief exist.
- Mz 14y agoListen, the remark above which you are currently criticizing was not bitter and was not a complaint about my situation. It was intended to be supportive of raganwald. Perhaps it utterly failed. No big. If you would really like to help me, I would appreciate if you stop trying to give this sort of "social" feedback to me, especially publicly. It isn't going to help me. I understand the social challenges I face far better than you do. However, there is a type of feedback I am in desperate need of and cannot get. If your remarks to me actually are motivated by a constructive impulse, I could really use some feedback, probably privately, to help me start turning some of my stubs into posts. There is a yawning chasm in that regard which I don't know how to cross and no one can tell me how to cross. I could use a sounding board to help me bridge it. Otherwise, please just let it go. I am making inroads on quite a lot of things. Thanks.