This seems to be strongly US-centric. In other (welfare) countries, publicly funded registries are anonymized and made available to research. For every single c

This seems to be strongly US-centric. In other (welfare) countries, publicly funded registries are anonymized and made available to research. For every single case. Of course, there are tons of data we don't see, but that shouldn't be an argument for not trying. The 99.99% unpublished cases is because our models/explanations/knowledge can't efficiently condense the medical mystery into a diagnosis code. Everything can be prevented given sufficient knowledge. That's not the point. The point is how to prevent as much as possible.