4 ms·
This works really well because most of us are very privileged. I'm white, I have a good job. Yes I live in a republican hellhole state with just about the worst
by preg_match 2mo ago
This works really well because most of us are very privileged. I'm white, I have a good job. Yes I live in a republican hellhole state with just about the worst policies on anything you can imagine. But I am isolated because of my status. Things can be shit and I can be fine, and I am. I have gone over 6 months without social media, and it works.
But... you do notice the cracks. Slowly. You see it at Walmart, I see it when I go out to the clubs. Lots of cops around. Nobody dancing. A bouncer for the bathroom? Hm, okay. I travel to south Texas sometimes and you see it there, too. Lots of protesting. Fear everywhere. You drive through maybe 50 abandoned, impoverished towns. I see it in my community. Businesses closing left and right. Replaced. I say "I give them six months". I'm wrong, they close their doors in three. Weird.
And then I got cancer. I knew the healthcare system was bad, but I was young and healthy, so out of sight out of mind. Not anymore. However bad you think it is, it's worse. 10 people in the infusion room, one nurse running with her head cut off. My IV has been beeping for 30 minutes. The oncologist? She's not in the building, because she's the one oncologist for three different clinics 50 miles apart. Luckily, I only have to pay an arm and a leg for this. They had iPads in the infusion room. They removed those after a couple weeks, I guess they were too expensive. And I can't trust my care team. I have to review every single medication, every single scan, everything. My oncologist mentions medications I've never took. She misreads tests. I don't blame her, I know she's overextended, she probably barely knows who I am. So, I review everything, which means I need to call and request they fax it to my line. I guess a portal is too expensive. My primary care? The next appointment is in two months. Well that's okay, I only have cancer. He barely knows who I am, too. "You never did chemo, right, just surgery?". No... I did four cycles of chemo, we talked about this a couple months ago. He sets his phone down on the table and records our conversation. OK, I guess that's a thing now. I go home. Bills just show up every few days. I don't even know what for most of the time. I had surgery a year ago at this point. Random departments in the hospital still send me bills. I did prepay ~3,000 dollars for the surgery, but I guess that money is for something else? Not sure. I would call the hospital and ask to speak to billing, but I don't have the time or energy to be on hold.
Anyway, I guess my thesis is: yes things are good, for us. We need to remain humble and recognize our experiences are tinted by our privilege.