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> Had they offered me real treatment, I don't know what you mean by real treatment, but a doctor will offer you what he knows is best based on his education, e

by irahul 14y ago

> Had they offered me real treatment, I don't know what you mean by real treatment, but a doctor will offer you what he knows is best based on his education, experience, past medical history and medical tests. If that's unreal to you, well, I don't know what can the doctor do about that. > what is wrong with the bigger picture that I and other people would consciously choose to take our chances on unproven methods rather than accept what little was offered us. I am sorry but I am missing the bigger picture. If the doctor could help, he will. If he won't, some other doctor would. It's a service industry after all. But when doctors say they can't help you, it's because they can't. What's the bigger picture here? Modern medicine has limitations, error rates and unknowns. People acknowledge and work on them. As another commenter pointed out, the "alternate medicine" that actually works is called "medicine". If eating some fruit is curing cancer, it will be researched and integrated in modern medicine. The pharma companies or any other researcher have no reason not to accept things that work, whether they are manufactured in a lab or found in jungles of India.

Mz 14y ago
My doctor told me outright "people like you do not get well. Symptom management is the name of the game." When I improved anyway, he expressed no curiosity. He scheduled me fewer and fewer appointments and indicated other patients were more in need of his services than I was. It is routine that when patients with CF decline, their doctor makes zero effort to reverse the decline. Their decline is blamed on their genes. One doctor who did make real effort had a track record of helping people with CF improve. People used to travel very long distances to see him. Last I heard, he is now retired. But it is the norm in the medical community to tell people with CF, in essence, "Do not even bother to try. You are doomed anyway." even though all evidence supports the idea that this is not true.

by irahul 14y ago

Mz 14y ago

My doctor told me outright "people like you do not get well. Symptom management is the name of the game." When I improved anyway, he expressed no curiosity. He scheduled me fewer and fewer appointments and indicated other patients were more in need of his services than I was. It is routine that when patients with CF decline, their doctor makes zero effort to reverse the decline. Their decline is blamed on their genes. One doctor who did make real effort had a track record of helping people with CF improve. People used to travel very long distances to see him. Last I heard, he is now retired. But it is the norm in the medical community to tell people with CF, in essence, "Do not even bother to try. You are doomed anyway." even though all evidence supports the idea that this is not true.