5 ms·

Do you happen to have a summary of your story on the web somewhere? Not that you should feel obligated to share it, but if you have shared it before I would lik

Do you happen to have a summary of your story on the web somewhere? Not that you should feel obligated to share it, but if you have shared it before I would like to try to understand.

Mz 14y ago
There isn't really a summary of my story anywhere but there is a website. I commented on that elsewhere earlier today: http://news.ycombinator.com/item?id=4895256 http://news.ycombinator.com/item?id=4895256 There isn't a summary because I get accused of having Munchausen Syndrome -- a sick need for attention -- rather than Cystic Fibrosis. It is quite dangerous to try to tell my story. It routinely results in public attacks, and moderators typically side with my attackers. You are welcome to email me if you wish to discuss it privately.
- lutusp 14y ago
  > There isn't a summary because I get accused of having Munchausen Syndrome ... And it has occurred to you that you may have Munchausen Syndrome, yes? > It is quite dangerous to try to tell my story. Not if you tell the truth. "Truth never damages a cause that is just" -- Gandhi > It routinely results in public attacks, and moderators typically side with my attackers. But with no justification or reason at all. Right? It's obvious that you're playing this out for all it is worth, without providing any real information, portraying yourself as the innocent victim of persecution, but in a way calculated to avoid providing any actual data, or anything that might lead to a resolution. I wonder if you realize how transparent you are, to an objective observer?
  - Mz 14y ago
    People with Munchausen claim to be ill and manufacture fake symptoms when they are not. I was ill and am getting well, a claim most people will not accept as true. What "real information" do you want? I linked to my website. You are the one focusing on dismissing me, personally, and have apparently not bothered to even check the website. Here are the direct links if you need them again: http://www.healthgazelle.com http://www.healthgazelle.com http://www.healthgazelle.com/oldsite/archive.shtml http://www.healthgazelle.com/oldsite/archive.shtml
    - lutusp 14y ago
      > People with Munchausen claim to be ill and manufacture fake symptoms when they are not. People with Munchausen fake medical difficulties. You're displaying all the classic symptoms. The distinction between suffering from an imaginary ailment, or slowly recovering from an imaginary ailment, makes no difference. > You are the one focusing on dismissing me, personally, and have apparently not bothered to even check the website. I read your comments there, and they're as uninformative as your comments here. Color me surprised. > What "real information" do you want? If you weren't a Munchausen sufferer, you would already know the answer to that question, and you would have already answered it -- either here or on the other forum at which you vent your dissatisfaction with reality.
      - Mz 14y ago
        So, basically, you think I have Munchausen therefore I have it and there is no need to actually engage me in discussion. Color me surprised.
        lutusp 14y ago
        > to actually engage me in discussion. What discussion is that? If you had any idea what a discussion consisted of, you would be well underway by now. And you would have avoided trying to connect CF with "germs", even among computer people, people you obviously chose in the forlorn hope of sympathy from ignoramuses.
        jlgreco 14y ago
        I am going to guess you are sarcasticly "surprised" because he is saying something that you have heard many times before... my money is on, "Because it is true".
    - polyfractal 14y ago
      I think the reason people dismiss your posts is because your posts are always acrimoniously bitter, and usually off-topic and centered around your (unfortunate) medical history. If people continually dismiss your stories and call you a liar...why keep sharing them? Why do you feel the need to spread the bitter resentment to every thread you comment in? This thread is a good example: why did you need to say "I also know it is nearly impossible to talk to people about that. My views and experiences are dismissed wholesale before I even open my mouth."? It added nothing to your argument, except for dragging your medical condition into the conversation (which has since taken over this thread). However, at the end of the day, I don't know you at all and do not presume to judge your situation. This is the internet, so don't take anything other people say too seriously. I'd like to wish you well to you and your family =)

Do you happen to have a summary of your story on the web somewhere? Not that you should feel obligated to share it, but if you have shared it before I would like to try to understand.

Mz 14y ago

There isn't really a summary of my story anywhere but there is a website. I commented on that elsewhere earlier today: http://news.ycombinator.com/item?id=4895256 http://news.ycombinator.com/item?id=4895256 There isn't a summary because I get accused of having Munchausen Syndrome -- a sick need for attention -- rather than Cystic Fibrosis. It is quite dangerous to try to tell my story. It routinely results in public attacks, and moderators typically side with my attackers. You are welcome to email me if you wish to discuss it privately.

lutusp 14y ago
> There isn't a summary because I get accused of having Munchausen Syndrome ... And it has occurred to you that you may have Munchausen Syndrome, yes? > It is quite dangerous to try to tell my story. Not if you tell the truth. "Truth never damages a cause that is just" -- Gandhi > It routinely results in public attacks, and moderators typically side with my attackers. But with no justification or reason at all. Right? It's obvious that you're playing this out for all it is worth, without providing any real information, portraying yourself as the innocent victim of persecution, but in a way calculated to avoid providing any actual data, or anything that might lead to a resolution. I wonder if you realize how transparent you are, to an objective observer?
- Mz 14y ago
  People with Munchausen claim to be ill and manufacture fake symptoms when they are not. I was ill and am getting well, a claim most people will not accept as true. What "real information" do you want? I linked to my website. You are the one focusing on dismissing me, personally, and have apparently not bothered to even check the website. Here are the direct links if you need them again: http://www.healthgazelle.com http://www.healthgazelle.com http://www.healthgazelle.com/oldsite/archive.shtml http://www.healthgazelle.com/oldsite/archive.shtml
  - lutusp 14y ago
    > People with Munchausen claim to be ill and manufacture fake symptoms when they are not. People with Munchausen fake medical difficulties. You're displaying all the classic symptoms. The distinction between suffering from an imaginary ailment, or slowly recovering from an imaginary ailment, makes no difference. > You are the one focusing on dismissing me, personally, and have apparently not bothered to even check the website. I read your comments there, and they're as uninformative as your comments here. Color me surprised. > What "real information" do you want? If you weren't a Munchausen sufferer, you would already know the answer to that question, and you would have already answered it -- either here or on the other forum at which you vent your dissatisfaction with reality.
    - Mz 14y ago
      So, basically, you think I have Munchausen therefore I have it and there is no need to actually engage me in discussion. Color me surprised.
      - lutusp 14y ago
        > to actually engage me in discussion. What discussion is that? If you had any idea what a discussion consisted of, you would be well underway by now. And you would have avoided trying to connect CF with "germs", even among computer people, people you obviously chose in the forlorn hope of sympathy from ignoramuses.
      - jlgreco 14y ago
        I am going to guess you are sarcasticly "surprised" because he is saying something that you have heard many times before... my money is on, "Because it is true".
  - polyfractal 14y ago
    I think the reason people dismiss your posts is because your posts are always acrimoniously bitter, and usually off-topic and centered around your (unfortunate) medical history. If people continually dismiss your stories and call you a liar...why keep sharing them? Why do you feel the need to spread the bitter resentment to every thread you comment in? This thread is a good example: why did you need to say "I also know it is nearly impossible to talk to people about that. My views and experiences are dismissed wholesale before I even open my mouth."? It added nothing to your argument, except for dragging your medical condition into the conversation (which has since taken over this thread). However, at the end of the day, I don't know you at all and do not presume to judge your situation. This is the internet, so don't take anything other people say too seriously. I'd like to wish you well to you and your family =)