You'd like the weconsent-guys (led by John Wilbanks) which tries to fulfill all of the given aims by a) being a central repo for medical data and b) introducing

You'd like the weconsent-guys (led by John Wilbanks) which tries to fulfill all of the given aims by a) being a central repo for medical data and b) introducing the required legal paperwork (for example, a license or contract which prohibits to identify anonymous participants based on their data) http://weconsent.us/ http://weconsent.us/ AFAIK, they are still a bit in the early stages but you might want to keep an eye on them.