3 ms·

> There are curable disabilities. True, but it should be obvious in 99% of cases if a condition is lifelong. >And what's curable changes along with the advanc

> There are curable disabilities. True, but it should be obvious in 99% of cases if a condition is lifelong. >And what's curable changes along with the advance of technology. Very rarely tbh. I can't think of a single lifelong condition that was cured in the last decade. Even then it should be trivial to only review cases when a cure is available, by searching the database for people with that condition.

jaggederest 6mo ago
Hepatitis C has effectively been cured. Obesity, sickle cell, and cystic fibrosis have all heard their death knell though not a complete cure. Hep C regimens are getting closer and closer to "take a pill for a couple months" - no more interferon injections or multiple rounds of multiple drugs. Trikafta is a functional cure for 90% of CF patients, I believe - not easy or cheap but normalizes what you care about bar the administration of the treatment itself. Sickle cell has CRISPR treatments that are incredibly invasive and awful but do functionally cure the disease more or less permanently for a cool "couple million" And everyone knows about GLP-1 drugs for obesity. The latest batch are as good or better than bariatric surgery without, you know, the surgery part.
- michaelkeenan 6mo ago
  Great list! There's also Leber congenital amaurosis, a form of blindness that now has a (very expensive) gene therapy: https://www.wgbh.org/news/2017-10-12/fda-panel-endorses-gene-therapy-for-a-form-of-childhood-blindness https://www.wgbh.org/news/2017-10-12/fda-panel-endorses-gene...
maweaver 6mo ago
Relevant to this story, laser eye surgery was developed in the late 80s/early 90s and can improve sight to the level that some who were legally blind no longer are.
- DrammBA 6mo ago
  > Relevant to this story Is it? The Author mentions he has degenerated optical nerves from birth, I don't think laser fixes that.
  - kakacik 6mo ago
    Yeah, but don't expect this level of fine granularity from government, any government, thats ridiculous expectations. Heck, I wouldn't expect it neither from any private company as a default state.
    - DrammBA 6mo ago
      I wouldn't expect it from any goverment either, but I would expect it from someone who allegedly read the story and is trying to share relevant information.

jaggederest 6mo ago

Hepatitis C has effectively been cured. Obesity, sickle cell, and cystic fibrosis have all heard their death knell though not a complete cure. Hep C regimens are getting closer and closer to "take a pill for a couple months" - no more interferon injections or multiple rounds of multiple drugs. Trikafta is a functional cure for 90% of CF patients, I believe - not easy or cheap but normalizes what you care about bar the administration of the treatment itself. Sickle cell has CRISPR treatments that are incredibly invasive and awful but do functionally cure the disease more or less permanently for a cool "couple million" And everyone knows about GLP-1 drugs for obesity. The latest batch are as good or better than bariatric surgery without, you know, the surgery part.

michaelkeenan 6mo ago
Great list! There's also Leber congenital amaurosis, a form of blindness that now has a (very expensive) gene therapy: https://www.wgbh.org/news/2017-10-12/fda-panel-endorses-gene-therapy-for-a-form-of-childhood-blindness https://www.wgbh.org/news/2017-10-12/fda-panel-endorses-gene...

maweaver 6mo ago

Relevant to this story, laser eye surgery was developed in the late 80s/early 90s and can improve sight to the level that some who were legally blind no longer are.

DrammBA 6mo ago
> Relevant to this story Is it? The Author mentions he has degenerated optical nerves from birth, I don't think laser fixes that.
- kakacik 6mo ago
  Yeah, but don't expect this level of fine granularity from government, any government, thats ridiculous expectations. Heck, I wouldn't expect it neither from any private company as a default state.
  - DrammBA 6mo ago
    I wouldn't expect it from any goverment either, but I would expect it from someone who allegedly read the story and is trying to share relevant information.