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Dianna got better sometime last year as well, just in time to fly home to Hawaii for her father's funeral (yeah ...), but she got a lot worse again later. I rea

Dianna got better sometime last year as well, just in time to fly home to Hawaii for her father's funeral (yeah ...), but she got a lot worse again later. I really hope things will keep going well for Dianna now. Props for her husband who's been incredible of taking care of her.

dataflow 7mo ago
Man... I came here hoping to read she was fine now. Had no idea things got worse again :( I hope things get better for her.
- deleted 7mo ago
  [deleted]
- Jeremy1026 7mo ago
  At the moment, she appears to be progressing up. The user you are replying to was talking about a past up-swing followed by a down-swing. Hopefully there isn't a down-swing to follow this current up-swing.
PaulKeeble 7mo ago
This is the nature of ME/CFS (caused by Covid or otherwise), it does vary somewhat over time although the course is not always to improvement or around the same level but sometimes to death. She received some form of experimental treatments in order to gain the prior recovery which was at least a stellate ganglion block, she has not mentioned what else she may have received. Hopefully she maintains a higher baseline from here on out and the production of these videos doesn't produce further Post Exertional Mailise that could worsen her condition.
- Jerrrrrrrry 7mo ago
  >"Otherwise" Would could this possibly be referring to?
  - fragmede 7mo ago
    Epstein-Barr virus (EBV), unknown genetic conditions or other unknown stressors.
  - deleted 7mo ago
    [deleted]
  - PaulKeeble 7mo ago
    Many different viral infections and other immune pressures can kick off ME/CFS. We don't yet know what otherwise actually means really, Epstein Bar Virus and Influenza but there is likely many others and only 70% of patients with the condition say it was initiated with an infection. Its a question well worth good research, there just isn't much in the way of funding for ME/CFS.
aaron695 7mo ago
[dead]
phendrenad2 7mo ago
Aww, I was excited to see her name pop up again, thought maybe she had recovered.

dataflow 7mo ago

Man... I came here hoping to read she was fine now. Had no idea things got worse again :( I hope things get better for her.

deleted 7mo ago
[deleted]
Jeremy1026 7mo ago
At the moment, she appears to be progressing up. The user you are replying to was talking about a past up-swing followed by a down-swing. Hopefully there isn't a down-swing to follow this current up-swing.

PaulKeeble 7mo ago

This is the nature of ME/CFS (caused by Covid or otherwise), it does vary somewhat over time although the course is not always to improvement or around the same level but sometimes to death. She received some form of experimental treatments in order to gain the prior recovery which was at least a stellate ganglion block, she has not mentioned what else she may have received. Hopefully she maintains a higher baseline from here on out and the production of these videos doesn't produce further Post Exertional Mailise that could worsen her condition.

Jerrrrrrrry 7mo ago
>"Otherwise" Would could this possibly be referring to?
- fragmede 7mo ago
  Epstein-Barr virus (EBV), unknown genetic conditions or other unknown stressors.
- deleted 7mo ago
  [deleted]
- PaulKeeble 7mo ago
  Many different viral infections and other immune pressures can kick off ME/CFS. We don't yet know what otherwise actually means really, Epstein Bar Virus and Influenza but there is likely many others and only 70% of patients with the condition say it was initiated with an infection. Its a question well worth good research, there just isn't much in the way of funding for ME/CFS.

aaron695 7mo ago

[dead]

phendrenad2 7mo ago

Aww, I was excited to see her name pop up again, thought maybe she had recovered.