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I was responding to the statement from the article that it had explicitly banned anything to do with race, ancestry, or ethnicity. I have not read the full pol

I was responding to the statement from the article that it had explicitly banned anything to do with race, ancestry, or ethnicity. I have not read the full policy. > To put it simply, how do we get samples from marginalised groups if we plan to allow to use that data for them to be marginalised? You said in your previous comment above that these categories aren't useful anyway, which brings up some questions: 1. If that is the NIH's opinion, then why did they label the data with those categories? 2. If these categories are actually not useful, then why should I care if the dataset isn't balanced between members of those categories? > But the article is also about groups engaging in academic dishonesty to bypass NIH policy. It really makes me question their motives and that they aren't simply scientists seeking truth. To the contrary, I consider any such restriction on the topic of research to be fundamentally unscientific and I mistrust any scientist who feels an ethical obligation to comply with such political censorship.

rustyhancock 9mo ago
It's not restricted. NIH won't allow you to use the datasets they control for it. It is practically and pragmatically reasonable for them to do that. It's also ethically sound to not let the data subjects data be used for something they wouldn't want as the data controller. If a scientist wants to do the research then they can pursue it and find a journal to publish it in. The reputable journals are unlikely to find it of interest unless it was a huge effect size. But we know any effect size must be tiny hence the need for a huge dataset. They'd have to take samples and basically tell the person the intension was to check if some races were genetically inferior let's see how well they do with recruitment. I wouldn't give a sample. Or just do a GWAS study and then develop metrics for estimating risk for individuals which can make use of ethnicity.

rustyhancock 9mo ago

It's not restricted. NIH won't allow you to use the datasets they control for it. It is practically and pragmatically reasonable for them to do that. It's also ethically sound to not let the data subjects data be used for something they wouldn't want as the data controller. If a scientist wants to do the research then they can pursue it and find a journal to publish it in. The reputable journals are unlikely to find it of interest unless it was a huge effect size. But we know any effect size must be tiny hence the need for a huge dataset. They'd have to take samples and basically tell the person the intension was to check if some races were genetically inferior let's see how well they do with recruitment. I wouldn't give a sample. Or just do a GWAS study and then develop metrics for estimating risk for individuals which can make use of ethnicity.