4 ms·
I was prescribed vit a palmitate, lutein, and DHA. The vit prescribed was a high dose, like 10k iu per day. I cut back on that dose, I'm going blind but I also
by zachrip 11mo ago
I was prescribed vit a palmitate, lutein, and DHA. The vit prescribed was a high dose, like 10k iu per day. I cut back on that dose, I'm going blind but I also need to consider my general health. I have ushers syndrome, not md, but it's a retinal disease (retinitis pigmentosa).
To be clear, this is prescribed as a "we can't do anything else for you" thing, since there is no cure for RP. This may or may not actually help.
- jasfi 11mo agoSorry to hear that. Given that it's genetic only something like Crispr could perhaps one day help.
- zachrip 11mo agoThey're also working on mRNA treatments, there is the LUNA study currently underway. Unfortunately I have a rare variant that isn't covered by this treatment. I'm hopeful but alas I live my life like treatment isn't coming because it's probably not.