3 ms·

> ~5% of people in the US have experienced anaphylaxis, but I don't know your definition of rare. What's your source here, and how many of those people actuall

> ~5% of people in the US have experienced anaphylaxis, but I don't know your definition of rare. What's your source here, and how many of those people actually experienced a non-allergic one-off angioedema that was misdiagnosed as anaphylaxis "just in case"? Or worse, wasn't even diagnosed, their parent saw them experience angioedema after eating something for the first time and assumed an allergy without any diagnosis ever?

MeetingsBrowser 1y ago
"Anaphylaxis in America: the prevalence and characteristics of anaphylaxis in the United States" > The most common triggers reported were medications (34%), foods (31%), and insect stings (20%) https://pubmed.ncbi.nlm.nih.gov/24144575/ https://pubmed.ncbi.nlm.nih.gov/24144575/ not a doctor but a "one off face swelling" after eating something for the first time seems like it would be much more rare than an actual allergic reaction.
- margalabargala 1y ago
  That's what I thought too, until I had a one off face swelling and throat closing event after eating a new food and went to an allergist, only to learn I was not allergic and have had successful re-eatings of that food. What I learned from the allergist is, histamine angioedema is essentially the same thing as anaphylaxis, and is treated the same, but is different in cause in that repeat exposure to the food item will not cause a repeat episode. I'm not a doctor either, but according to my allergist (who is), most people who think they are allergic to some random thing that most people have never heard of people being allergic to, are not in fact allergic to that thing. Reading the full text of the article you linked it looks like their criteria cover both angioedema and anaphylaxis and add the two together. Here's some additional info: https://knyamed.com/blogs/difference-between/angioedema-vs-anaphylaxis https://knyamed.com/blogs/difference-between/angioedema-vs-a... https://emcrit.org/ibcc/angioedema/#diagnosis_of_angioedema https://emcrit.org/ibcc/angioedema/#diagnosis_of_angioedema

MeetingsBrowser 1y ago

"Anaphylaxis in America: the prevalence and characteristics of anaphylaxis in the United States" > The most common triggers reported were medications (34%), foods (31%), and insect stings (20%) https://pubmed.ncbi.nlm.nih.gov/24144575/ https://pubmed.ncbi.nlm.nih.gov/24144575/ not a doctor but a "one off face swelling" after eating something for the first time seems like it would be much more rare than an actual allergic reaction.

margalabargala 1y ago
That's what I thought too, until I had a one off face swelling and throat closing event after eating a new food and went to an allergist, only to learn I was not allergic and have had successful re-eatings of that food. What I learned from the allergist is, histamine angioedema is essentially the same thing as anaphylaxis, and is treated the same, but is different in cause in that repeat exposure to the food item will not cause a repeat episode. I'm not a doctor either, but according to my allergist (who is), most people who think they are allergic to some random thing that most people have never heard of people being allergic to, are not in fact allergic to that thing. Reading the full text of the article you linked it looks like their criteria cover both angioedema and anaphylaxis and add the two together. Here's some additional info: https://knyamed.com/blogs/difference-between/angioedema-vs-anaphylaxis https://knyamed.com/blogs/difference-between/angioedema-vs-a... https://emcrit.org/ibcc/angioedema/#diagnosis_of_angioedema https://emcrit.org/ibcc/angioedema/#diagnosis_of_angioedema