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Biobank is a voluntary data collection system, I thought. It's not based on whether someone is sick. (Unless I've misunderstood somewhere)
by AndrewDucker 1y ago
Biobank is a voluntary data collection system, I thought. It's not based on whether someone is sick.
(Unless I've misunderstood somewhere)
- 2dvisio 1y agoYes. UK Biobank is a voluntary programme. (I work in Genomic)
- hopelite 1y ago[flagged]
- taeric 1y agoI think the assertion is that most people basically don't feel they have anything special genetically. As such, most people just aren't entering these databases that are opt-in. Contrast this to people that do have a genetic oddity about them. Just having the traits is often enough to get people to find out more about them.
- rcxdude 1y agoPerhaps, but it is primarily about allowing researchers to find healthy people with particular genes for their research (most commonly: they suspect a gene is involved in a disease, and while they have plenty of people with that disease and gene, they also need to look for people who have that gene and don't have the disease).
- taeric 1y agoRight, that assertion did not intend on bad intentions of this research. Just pointing out that you can get a selection bias on open calls, as well.