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Let's take this as a specific example of the general complaint lodged: > Let’s take healthcare as an example. The current system forces patients to spread piec
by deathanatos 1y ago
Let's take this as a specific example of the general complaint lodged:
> Let’s take healthcare as an example. The current system forces patients to spread pieces of their medical history across countless proprietary databases controlled by insurance companies, hospital networks, and electronic health record vendors.
If by "system", you mean the available technical standards, they in no way force that. If by "system" you mean capitalism … then perhaps, but an additional technical standard is not going to fix that. People build systems the way they build them because of barriers such as the unwillingness of other players to share data, the lack of technical knowledge of those implementing the systems, and the technical but-non-standards-related barriers of having disparate entities sharing infrastructure (e.g., what if someone sends too much load, if the system housing the data is down, etc.).
> Patients frustratingly become a patchwork rather than a person, because they often can’t access their own complete medical history, let alone correct mistakes.
(IANAL.) This is one of those problems already solved de jure, but not de facto. By law, you have the right to access your own medical history, and with minor caveats, the right to correct mistakes in your data; not being able either of those is a violation of HIPAA.
Enforce the regulation, is what I'd say would be needed in that specific case, but good luck with that, of course. But that's the problem: even if Solid were amazing, did everything you ever wanted, what would cause industry to ever adopt it?
There's also HITECH, but it's vaguer, AIUI.
(HIPAA is about the only federal privacy law we've got; outside of that, I agree more firmly. Esp. the right to correct mistakes in other industries is practically non-existent. The end result of the argument above is still the same, though.)
I agree w/ Schneier, people need better control over their data. But I think that's a regulatory/legal problem, not a technical one. And that is the problem: the Dems are, at best, weak on privacy law and consumer protections, and the GOP is outright against it; worse, rulings like the striking of Chevron Deference are going to make enforcing existing laws hard enough.
- Vinnl 1y agoFWIW, Solid is mostly seeing interest in the EU.