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I love Steven Salzburg, but he's missing the main point here: 23andMe could have been sold to someone that is not based in California which would result in a l
by epistasis 1y ago
I love Steven Salzburg, but he's missing the main point here:
23andMe could have been sold to someone that is not based in California which would result in a loss of many protections currently there, such as being able to have the data be deleted.
Sure, the data is not that valuable. Nobody really cares that is doing serious decision making based on good science or following the law.
I think he also ignores a new risk that's developing: bad tests. Current polygenic risk scores are all the rage, but they are very close to junk science, and if not created and applied very very carefully, far more carefully than most machine learning models, they will be junk.
So even if there's nothing in your DNA that could be used to discriminate against you, bad application of the technology could harm (or benefit) you, completely randomly. All because some pointy haired boss demanded that a bad model gets built and applied, whether or not the engineers knew what they were doing or gave proper warning to management.
This isn't just health care, it could be admissions to a private school, or the application for an apartment or NYC housing co-op, or whatever.
That's a serious risk, that some junk company uses the data in completely inappropriate ways, once the data is out in the wild.
Why not delete? There's zero benefit to the consumer to keep the data in 23andMe, at least for this consumer. Others that want to connect with 5th cousins might think differently of course.
But the point is that it's a personal decision and we all have different values and wants.