I wish this guy a lot of luck. Whether he has a chance or not, I respect him immensely for not "standing on the sidelines". The story really hits close to him

I wish this guy a lot of luck. Whether he has a chance or not, I respect him immensely for not "standing on the sidelines". The story really hits close to him for me because I have one of the disorders they narrowed out for the poor girl. Like it said, 90% of the battle for surviving some of these is just knowing what you have. It's an overwhelming feeling of frustration and helplessness to have your life 100% at the mercy of a dysfunctional healthcare system. At the risk of using a gratuitous nerd metaphor, this guy's writing his own OS instead of using Windows.