Exceptionally well written. As the parent of a young disabled child myself I especially appreciated this bit of honesty: > accounts I have read from people wit

Exceptionally well written. As the parent of a young disabled child myself I especially appreciated this bit of honesty: > accounts I have read from people with disabilities and their parents: would you undo it? In one sense, it’s an idiotic query … If I could press a button that made Max’s life easier by granting him everything he has been denied, I would do it in a second. For some reason there is this social pressure to express “I wouldn’t trade it for the world because he is perfect just as he is”. Yes he is perfect in his own way, but the idea that you wouldn’t trade it for perfect health is BS. The other thing that struck me is how many idiotic things people say to parents in these situations. (We haven’t experienced that though, I guess we’ve been lucky).