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I sense a lawsuit incoming that could lead to a supreme court decision on the basis of this being medical data, who actually owns that data? It really isn’t 23a

I sense a lawsuit incoming that could lead to a supreme court decision on the basis of this being medical data, who actually owns that data? It really isn’t 23andme’s dna to sell to the highest bidder, it’s the customer’s protected health data, and would fall under HIPAA.

butlike 1y ago
I Want To Believe.
westmeal 1y ago
You're making too much sense
malfist 1y ago
With this corporatist court? You'd be lucky if they don't reverse the ban on using the data for health insurance and all privacy laws at the same time
- wyager 1y ago
  > reverse the ban on using the data for health insurance Right now, health "insurance" is transparently a subsidy scheme where the healthy subsidize the unhealthy. I wonder, if "insurance" companies were allowed to operate as actual actuarial net-neutral-EV honest-to-god insurance companies again, which political coalition would get net savings? I could see it going either way. Conceivably, the efficiency gains from having actual insurance again would result in net-positive EV for both sides.
criddell 1y ago
Be careful what you wish for. If this goes to the current court, having HIPAA struck down wouldn't be all that shocking.
AStonesThrow 1y ago
23andMe doesn't fall under HIPAA at all. HIPAA is scoped to only cover specific entities. Once someone sells/gives your PHI to a non-HIPAA entity, then it's no longer private at all. There are usually disclaimers and warnings about this from providers when you release such things. This is because HIPAA isn't designed to protect your privacy or your data but it's designed to protect the providers and insurance carriers. It's covering their legal asses and maximizing difficulty for everyone else to access information about what they've done to you. It's about protecting their investment. If HIPAA were designed to protect your privacy, then HIPAA would apply to your data or you personally, rather than the narrow scope of regulated entities.

butlike 1y ago

I Want To Believe.

westmeal 1y ago

You're making too much sense

malfist 1y ago

With this corporatist court? You'd be lucky if they don't reverse the ban on using the data for health insurance and all privacy laws at the same time

wyager 1y ago
> reverse the ban on using the data for health insurance Right now, health "insurance" is transparently a subsidy scheme where the healthy subsidize the unhealthy. I wonder, if "insurance" companies were allowed to operate as actual actuarial net-neutral-EV honest-to-god insurance companies again, which political coalition would get net savings? I could see it going either way. Conceivably, the efficiency gains from having actual insurance again would result in net-positive EV for both sides.

criddell 1y ago

Be careful what you wish for. If this goes to the current court, having HIPAA struck down wouldn't be all that shocking.

AStonesThrow 1y ago

23andMe doesn't fall under HIPAA at all. HIPAA is scoped to only cover specific entities. Once someone sells/gives your PHI to a non-HIPAA entity, then it's no longer private at all. There are usually disclaimers and warnings about this from providers when you release such things. This is because HIPAA isn't designed to protect your privacy or your data but it's designed to protect the providers and insurance carriers. It's covering their legal asses and maximizing difficulty for everyone else to access information about what they've done to you. It's about protecting their investment. If HIPAA were designed to protect your privacy, then HIPAA would apply to your data or you personally, rather than the narrow scope of regulated entities.