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I'm a UK citizen and I'm okay with sharing health records as long as they are sufficiently anonymised and I doubt that my details are rare enough to make me eas
by ndsipa_pomu 2y ago
I'm a UK citizen and I'm okay with sharing health records as long as they are sufficiently anonymised and I doubt that my details are rare enough to make me easy to identify (not that I'd be a target for Chinese security services anyhow).
Ultimately, global health should benefit from being able to perform analyses on people in different areas with different lifestyles and determine the effects of things such as air pollution, poor diet, sedentary lifestyles etc.
- dudefeliciano 2y agoThe data shared comes from volunteers, so i doubt your records are in there if you did not contribute to the project. This is key, it should always be opt-in only.
- ndsipa_pomu 2y agoWould that be "Our Future Health" in which case I am one of the volunteers.
- dudefeliciano 2y agoUK Biobank >Preparations are under way to transfer the records to UK Biobank, a research hub that holds detailed medical information donated by 500,000 volunteers.
- ndsipa_pomu 2y agoApparently they're similar yet complementary projects: https://www.ukbiobank.ac.uk/explore-your-participation/stay-involved/2022-newsletter/our-future-health https://www.ukbiobank.ac.uk/explore-your-participation/stay-...