4 ms·
"Why would you spit into a tube then mail it to the internet?" -- Bill Burr
by timewizard 2y ago
"Why would you spit into a tube then mail it to the internet?"
-- Bill Burr
- toomuchtodo 2y agoBecause I was curious. (submitted a data deletion request)
- qqqult 2y agois_deleted = True update is in progress
- toomuchtodo 2y agoAnd if it turns out that’s the case, I’ll file suit and establish a class action on my own dime. That’s how the gears turn and recourse made available. Actions have consequences.
- dandrew5 2y agoHow would you know? I also submitted a deletion request to that airport identity service Clear to avoid missing a flight one time. I received an email "Your request has been received" and nothing else. Is there a way we can validate our information is actually deleted?
- toomuchtodo 2y agoIt will either be disclosed in bankruptcy proceedings, and failing that, finding a whistleblower who has access to the data and can/will attest to the fraud.
- hayst4ck 2y agoWith regulations, it really is the type of thing that would benefit a lot of people as well as biological science as a whole in America.
- pmags 2y agoAll of Us -- https://allofus.nih.gov/ https://allofus.nih.gov/ -- and similar efforts benefit biological science as a whole. 23 and Me not so much...
- rchaud 2y agoIf it's so valuable, companies can pay you for it, just as blood banks do for plasma donations. 23andme are double dipping by charging for these tests and turning around to sell the data for drug discovery research or wherever it goes.
- themagician 2y agoIt's actually wild to imagine what could be done, with current compute power, if you had the full genome of every person in the US in addition to their healthcare records. I would bet that you'd be able to determine, with high confidence, the probability of many serious health conditions years or even decades before symptoms appear. And it would completely change the manufacture and administration of medicines. It would change the course of human history. Of course, we'd totally !@#$ it up and use it to put group X, Y, and Z in camps or try to breed super soldiers.
- hayst4ck 2y agoThere is a lot of academic talk about how focusing on democracy rather than constitutionality (rule of law) has done us a great disservice. It turns out voting is much less important than limits on arbitrary executions of power. Everything that's good comes out of their being "just" rules for the most powerful members of society, democracy can facilitate it, but does not guarantee Rule of Law. Richard Fenyman on "cargo cult science": I think the educational and psychological studies I mentioned are examples of what I would like to call Cargo Cult Science. In the South Seas there is a Cargo Cult of people. During the war they saw airplanes land with lots of good materials, and they want the same thing to happen now. So they’ve arranged to make things like runways, to put fires along the sides of the runways, to make a wooden hut for a man to sit in, with two wooden pieces on his head like headphones and bars of bamboo sticking out like antennas—he’s the controller—and they wait for the airplanes to land. They’re doing everything right. The form is perfect. It looks exactly the way it looked before. But it doesn’t work. No airplanes land. So I call these things Cargo Cult Science, because they follow all the apparent precepts and forms of scientific investigation, but they’re missing something essential, because the planes don’t land. Democracy without Rule of Law is a cargo cult democracy. It is form without substance. It seems like it should produce good outcomes but doesn't. The planes aren't landing...
- gosub100 2y agoI did this for bone marrow donation. God knows what they did with my DNA sequence but if they match it, it's quite likely I'd be the only one who could help (due to the uniqueness required). It'd be an honor.