5 ms·

Long Covid impacted more than 1M children: CDC study suggests

63 points by luu 2y ago

throwaway888abc 2y ago
(2023) yet published by ABC in 2025 https://www.cdc.gov/nchs/products/databriefs/db479.htm https://www.cdc.gov/nchs/products/databriefs/db479.htm any one has more update data ?
- throwaway888abc 2y ago
  CDC’s website is being modified to comply with President Trump’s Executive Orders.
  - sgalbincea 2y ago
    [dead]
    - deleted 2y ago
      [deleted]
  - deleted 2y ago
    [deleted]
- nostrademons 2y ago
  There was a bulk re-dating of all federal government websites to game Google and make it seem like the new administration is doing more than it actually is: https://www.theguardian.com/us-news/2025/feb/06/ice-us-immigration-deportations-google https://www.theguardian.com/us-news/2025/feb/06/ice-us-immig... Likely many mainstream news sources are using LLMs to summarize existing data sources and not actually reading them with a human, so ABC's crawlers pick up the new federal data, it's been re-datestamped to make it seem like it's dated Jan 24 2025, the AI naively reports it as being published last Monday, and then readers assume it's new reporting. Win-win for everyone involved, and completely useless as news.
  - horacemorace 2y ago
    > Win-Win for everyone involved The only losers are the 99%
    - nostrademons 2y ago
      So it goes with many things today.
- thenerdhead 2y ago
  It's published here. https://jamanetwork.com/journals/jamapediatrics/fullarticle/2829880 https://jamanetwork.com/journals/jamapediatrics/fullarticle/... Another publication this week showed 4% of children developed Long COVID based on EHR data. https://academic.oup.com/cid/advance-article/doi/10.1093/cid/ciaf046/8002322 https://academic.oup.com/cid/advance-article/doi/10.1093/cid...
actuallyalys 2y ago
The headline is a bit misleading, as the 1 million figure refers to children who had ever had Long Covid, and 293,000 were experiencing it at the time of the survey. That doesn't mean it isn't a serious issue, but I believe accuracy is important here.
- dmix 2y ago
  It’s also entirely self reported by parents not medical professionals.
- thenerdhead 2y ago
  These headlines are accurate to the study and their noted limitations, not necessarily the actual prevalence which is already known to be much higher than this. i.e. https://publications.aap.org/pediatrics/article/153/3/e2023062570/196606/Postacute-Sequelae-of-SARS-CoV-2-in-Children https://publications.aap.org/pediatrics/article/153/3/e20230... or https://www.nih.gov/news-events/news-releases/nih-funded-study-finds-long-covid-affects-adolescents-differently-younger-children https://www.nih.gov/news-events/news-releases/nih-funded-stu...
  - actuallyalys 2y ago
    Unfortunately, I can't access the full text of the study directly, but I would argue it would be more accurate to say it impacted (past tense) 1 million children, assuming this paragraph from the news story is correct: > Results of the analysis, published in the journal JAMA Pediatrics, showed approximately 1.01 million children, or 1.4%, are believed to have ever experienced long COVID as of 2023 and about 293,000, or 0.4%, were experiencing the condition when the survey was being conducted. There are certainly reasons to think it might be under-reported, so perhaps that should go in the headline (or subheadline) as well. But I don't think the headline should suggest this particular study estimated 1 million children were experiencing it at the time.
    - thenerdhead 2y ago
      That’s a fair point. Science reporting often skips the discussion section, which adds important context. A strong report would compare this with other studies to show the bigger picture, especially given concerns about undercounting. This report has led to a lot of minimization and misinterpretation especially from certain bad faith actors. Some claim the number is “stable” year over year, suggesting long COVID isn’t a big deal, overlooking that this study uses a completely new sample each year, not the same children.
tap-snap-or-nap 2y ago
I wonder how much of this is related to the attention economy in combination with perhaps lack of sun, healthy diet, fresh air and regular exercise.
- plutomeetsyou 2y ago
  [flagged]
- roguecoder 2y ago
  If these symptoms were not attributable to covid, we would expect that the symptoms would be present at the same rate in patients who have never had covid, no? I'm also not sure what the explanation would be for why the symptoms improve over time, if those were the causes.
  - whimsicalism 2y ago
    there are studies indicating more symptom correlation with perception of having had covid than actually having had it
- actuallyalys 2y ago
  Given the severity of long Covid in many cases, I doubt that’s a more than a negligible factor.
- Unbefleckt 2y ago
  I didnt do anything during lockdown, that is, I carried on mostly as normal. I co-founded a community that was about socialisation for kids and being outdoors. None of us have long covid. None of us had anything worse than a flu. I also have friends that I didn't see closer than 10 metres during lockdown, they stayed indoors and watched Netflix, ordered food online, and behave themselves. 8 of them have "long covid". I understand anecdote isn't evidence, but when this whole thing became political I decided I can only make decisions based on experience and not what my better insist upon me.
- thenerdhead 2y ago
  Or a virus known to persist in our tissues for years. Here’s yet another study suggesting persistent symptoms in kids. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2830031 https://jamanetwork.com/journals/jamanetworkopen/fullarticle... More than willing to provide a list of studies demonstrating viral persistence as well.
whimsicalism 2y ago
i think we need to rethink our strategy for treating long covid, cfs/me, ibs, and related functional diseases
thenerdhead 2y ago
Long COVID in kids is real and widespread. It’s not "rare". Far more than 200k are affected. This latest survey aligns with previous data, but it’s likely an undercount(noted by the authors as a limitation) due to reliance on parental reporting. Kids often struggle to articulate symptoms. Pediatric Long COVID has been ignored despite millions suffering debilitating effects. Note: I work on NIH efforts to cure Long COVID called RECOVER, RECOVER-TLC, and help non-profits dedicated towards viral persistence/immune dysfunction hypotheses. https://www.youtube.com/watch?v=R9xYNAPrMAE https://www.youtube.com/watch?v=R9xYNAPrMAE https://jamanetwork.com/journals/jama/fullarticle/2822770 https://jamanetwork.com/journals/jama/fullarticle/2822770
- internet_user 2y ago
  given lack of success with ME/CFS, do you think we'll fare any better this time? post-viral syndromes have been with us for a long time. outside of very clear sequelae like definitive texbook case of autoimmune disease or something obvious like that - we don't really know how to treat them?
  - thenerdhead 2y ago
    absolutely, in fact many of the top ME/CFS researchers have converged their research and are teaming up with the Long COVID researchers to tackle this once and for all. we now have novel technology being used like PET scanning, T cell biosensors, and single molecule ultrasensitive assays. Antigen/superantigen persistence is shared and may be treated with extended courses of antivirals, monoclonal antibodies, immune modulators, and even trying checkpoint inhibitors to reverse T cell exhaustion. the textbook is being rewritten and a key publication on how to treat at least Long COVID based on what I mentioned above will come out next week. NIH will launch their trials very soon likely announcing in March.
    - internet_user 2y ago
      where is the key publication will be coming out next week?
reify 2y ago
CDC + Study = very sceptical Must be a new drug being developed from Ozempic or some other fake drug that cures long covid Long COVID most often occurs in people who had severe illness, but anyone can develop the condition, according to the CDC. yep. they are talking about children with no previous history of illness or disease. Its the poor folks who's parents earn under $100,000 per annum. Here we go again!!!! People who are not vaccinated against COVID-19 are at higher risk of developing long COVID, the agency says. What a load of bollocks
- thenerdhead 2y ago
  There’s strong biological evidence that SARS-CoV-2 can persist in tissues, supported by multiple studies. Before dismissing long COVID, it’s worth understanding what viruses are capable of.

63 points by luu 2y ago

(2023) yet published by ABC in 2025 https://www.cdc.gov/nchs/products/databriefs/db479.htm https://www.cdc.gov/nchs/products/databriefs/db479.htm any one has more update data ?

throwaway888abc 2y ago
CDC’s website is being modified to comply with President Trump’s Executive Orders.
- sgalbincea 2y ago
  [dead]
  - deleted 2y ago
    [deleted]
- deleted 2y ago
  [deleted]
nostrademons 2y ago
There was a bulk re-dating of all federal government websites to game Google and make it seem like the new administration is doing more than it actually is: https://www.theguardian.com/us-news/2025/feb/06/ice-us-immigration-deportations-google https://www.theguardian.com/us-news/2025/feb/06/ice-us-immig... Likely many mainstream news sources are using LLMs to summarize existing data sources and not actually reading them with a human, so ABC's crawlers pick up the new federal data, it's been re-datestamped to make it seem like it's dated Jan 24 2025, the AI naively reports it as being published last Monday, and then readers assume it's new reporting. Win-win for everyone involved, and completely useless as news.
- horacemorace 2y ago
  > Win-Win for everyone involved The only losers are the 99%
  - nostrademons 2y ago
    So it goes with many things today.
thenerdhead 2y ago
It's published here. https://jamanetwork.com/journals/jamapediatrics/fullarticle/2829880 https://jamanetwork.com/journals/jamapediatrics/fullarticle/... Another publication this week showed 4% of children developed Long COVID based on EHR data. https://academic.oup.com/cid/advance-article/doi/10.1093/cid/ciaf046/8002322 https://academic.oup.com/cid/advance-article/doi/10.1093/cid...

actuallyalys 2y ago

The headline is a bit misleading, as the 1 million figure refers to children who had ever had Long Covid, and 293,000 were experiencing it at the time of the survey. That doesn't mean it isn't a serious issue, but I believe accuracy is important here.

dmix 2y ago
It’s also entirely self reported by parents not medical professionals.
thenerdhead 2y ago
These headlines are accurate to the study and their noted limitations, not necessarily the actual prevalence which is already known to be much higher than this. i.e. https://publications.aap.org/pediatrics/article/153/3/e2023062570/196606/Postacute-Sequelae-of-SARS-CoV-2-in-Children https://publications.aap.org/pediatrics/article/153/3/e20230... or https://www.nih.gov/news-events/news-releases/nih-funded-study-finds-long-covid-affects-adolescents-differently-younger-children https://www.nih.gov/news-events/news-releases/nih-funded-stu...
- actuallyalys 2y ago
  Unfortunately, I can't access the full text of the study directly, but I would argue it would be more accurate to say it impacted (past tense) 1 million children, assuming this paragraph from the news story is correct: > Results of the analysis, published in the journal JAMA Pediatrics, showed approximately 1.01 million children, or 1.4%, are believed to have ever experienced long COVID as of 2023 and about 293,000, or 0.4%, were experiencing the condition when the survey was being conducted. There are certainly reasons to think it might be under-reported, so perhaps that should go in the headline (or subheadline) as well. But I don't think the headline should suggest this particular study estimated 1 million children were experiencing it at the time.
  - thenerdhead 2y ago
    That’s a fair point. Science reporting often skips the discussion section, which adds important context. A strong report would compare this with other studies to show the bigger picture, especially given concerns about undercounting. This report has led to a lot of minimization and misinterpretation especially from certain bad faith actors. Some claim the number is “stable” year over year, suggesting long COVID isn’t a big deal, overlooking that this study uses a completely new sample each year, not the same children.

tap-snap-or-nap 2y ago

I wonder how much of this is related to the attention economy in combination with perhaps lack of sun, healthy diet, fresh air and regular exercise.

plutomeetsyou 2y ago
[flagged]
roguecoder 2y ago
If these symptoms were not attributable to covid, we would expect that the symptoms would be present at the same rate in patients who have never had covid, no? I'm also not sure what the explanation would be for why the symptoms improve over time, if those were the causes.
- whimsicalism 2y ago
  there are studies indicating more symptom correlation with perception of having had covid than actually having had it
actuallyalys 2y ago
Given the severity of long Covid in many cases, I doubt that’s a more than a negligible factor.
Unbefleckt 2y ago
I didnt do anything during lockdown, that is, I carried on mostly as normal. I co-founded a community that was about socialisation for kids and being outdoors. None of us have long covid. None of us had anything worse than a flu. I also have friends that I didn't see closer than 10 metres during lockdown, they stayed indoors and watched Netflix, ordered food online, and behave themselves. 8 of them have "long covid". I understand anecdote isn't evidence, but when this whole thing became political I decided I can only make decisions based on experience and not what my better insist upon me.
thenerdhead 2y ago
Or a virus known to persist in our tissues for years. Here’s yet another study suggesting persistent symptoms in kids. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2830031 https://jamanetwork.com/journals/jamanetworkopen/fullarticle... More than willing to provide a list of studies demonstrating viral persistence as well.

whimsicalism 2y ago

i think we need to rethink our strategy for treating long covid, cfs/me, ibs, and related functional diseases

thenerdhead 2y ago

Long COVID in kids is real and widespread. It’s not "rare". Far more than 200k are affected. This latest survey aligns with previous data, but it’s likely an undercount(noted by the authors as a limitation) due to reliance on parental reporting. Kids often struggle to articulate symptoms. Pediatric Long COVID has been ignored despite millions suffering debilitating effects. Note: I work on NIH efforts to cure Long COVID called RECOVER, RECOVER-TLC, and help non-profits dedicated towards viral persistence/immune dysfunction hypotheses. https://www.youtube.com/watch?v=R9xYNAPrMAE https://www.youtube.com/watch?v=R9xYNAPrMAE https://jamanetwork.com/journals/jama/fullarticle/2822770 https://jamanetwork.com/journals/jama/fullarticle/2822770

internet_user 2y ago
given lack of success with ME/CFS, do you think we'll fare any better this time? post-viral syndromes have been with us for a long time. outside of very clear sequelae like definitive texbook case of autoimmune disease or something obvious like that - we don't really know how to treat them?
- thenerdhead 2y ago
  absolutely, in fact many of the top ME/CFS researchers have converged their research and are teaming up with the Long COVID researchers to tackle this once and for all. we now have novel technology being used like PET scanning, T cell biosensors, and single molecule ultrasensitive assays. Antigen/superantigen persistence is shared and may be treated with extended courses of antivirals, monoclonal antibodies, immune modulators, and even trying checkpoint inhibitors to reverse T cell exhaustion. the textbook is being rewritten and a key publication on how to treat at least Long COVID based on what I mentioned above will come out next week. NIH will launch their trials very soon likely announcing in March.
  - internet_user 2y ago
    where is the key publication will be coming out next week?

reify 2y ago

CDC + Study = very sceptical Must be a new drug being developed from Ozempic or some other fake drug that cures long covid Long COVID most often occurs in people who had severe illness, but anyone can develop the condition, according to the CDC. yep. they are talking about children with no previous history of illness or disease. Its the poor folks who's parents earn under $100,000 per annum. Here we go again!!!! People who are not vaccinated against COVID-19 are at higher risk of developing long COVID, the agency says. What a load of bollocks

thenerdhead 2y ago
There’s strong biological evidence that SARS-CoV-2 can persist in tissues, supported by multiple studies. Before dismissing long COVID, it’s worth understanding what viruses are capable of.