3 ms·
This is a frustrating conversation. It appears that anonymized data medical data are being sold en masse by providers (*) because money. But it's also obvious
by imglorp 2y ago
This is a frustrating conversation.
It appears that anonymized data medical data are being sold en masse by providers (*) because money. But it's also obvious to us tech folk how trivial it is to combine anonymized patient encounters with location and credit card purchase data etc to de-anonymize it and resell as enriched.
So the only people who are effectively bound by HIPAA are the well-intentioned ones who have to protect themselves and and comply; the rest are laughing at them on the way to the bank.
* https://www.theverge.com/2021/6/23/22547397/medical-records-health-data-hospitals-research https://www.theverge.com/2021/6/23/22547397/medical-records-...
* https://www.scientificamerican.com/article/how-data-brokers-make-money-off-your-medical-records/ https://www.scientificamerican.com/article/how-data-brokers-...
* https://www.medicaleconomics.com/view/who-profits-our-medical-records https://www.medicaleconomics.com/view/who-profits-our-medica...
- PittleyDunkin 2y ago> the rest are laughing at them on the way to the bank. My understanding is that HIPAA is intended to stop providers from colluding against the patient, not to stop providers or middlemen from enriching themselves with our data.
- otterley 2y agoAnd also to make PHI portable across providers.
- edwhitesell 2y agoForget about anonymous data; sometimes PII is not sold, it's just given away by staff who don't know better. See my comment here from my own experience: https://news.ycombinator.com/item?id=17183682 https://news.ycombinator.com/item?id=17183682