As someone who has lived with a chronic lifelong condition since childhood, I know this struggle deeply. The only time I have had success is connecting with e

As someone who has lived with a chronic lifelong condition since childhood, I know this struggle deeply. The only time I have had success is connecting with executives at the insurer on linkedin ( I work in medtech so that makes that easier) and then personally appealing to them, repeatedly, to help. Also, in every case, please report these things to the insurance boards in your state, your representatives, etc. Make it a process, get good at it. It's the only way to effect change.