4 ms·
yeah i should have said ashkenazi instead of mennonite, but i didn't want to come off as or attract a certain type of comment. this is a real thing. Gaucher's
by throwawaymaths 2y ago
yeah i should have said ashkenazi instead of mennonite, but i didn't want to come off as or attract a certain type of comment.
this is a real thing. Gaucher's disease, while anyone can get it in principle, is almost entirely a disease that afflicts ashkenazim. the treatment is cerezyme, which is one of the most expensive drugs, and you must take it for life.
and you missed the comment about sickle cell (only affects west africans and people of west african descent). which is now curable, but VERY expensive to cure.
- jrflowers 2y agoI didn’t miss anything. You can substitute in any real or imaginary rare and expensive disease if you want to define “healthcare” as something that excludes the general ability to see doctors and receive treatment for common illnesses and injuries. If you’re dead set on arguing about an arbitrary imaginary definition of a word, the world is your oyster. You can say sickle cell or Methuselah Syndrome or Tandy’s Malady, it’s all gravy if you can convince your mark that whatever you’re talking about is the same thing as the broad concept of healthcare.
- throwawaymaths 2y agowhat does it mean if healthcare doesn't include the corner cases though? where do you draw the line? is cancer treatment healthcare? what if you have a rare cancer? im not the one arguing from a made up definition here. almost ANYONE would consider cancer, rare cancer, sickle cell treatments, and gauchers treatments "healthcare". its disingenuous to put those outside the bag of things called healthcare just because its inconvenient to your worldview