3 ms·

yes and believe it or not healthcare runs into real constraints and concerns about equity, etc. suppose a rare disease is only well researched in a few white f

yes and believe it or not healthcare runs into real constraints and concerns about equity, etc. suppose a rare disease is only well researched in a few white families. lets say, the mennonites. curing the disease is possible, but expensive. should everyone else be forced to subsidize it? what if the markers are known and parents choose to have kids anyways even though they have the markers. does the situation change if its sickle cell anemia?

jrflowers 2y ago
This is a good point. If you imagine that by healthcare people mean an imaginary expensive Mennonite disease instead of the ability to see a doctor and receive treatment for common diseases and injuries it becomes very murky indeed.
- 6510 2y ago
  Combining the two seems a design flaw. The one requires research, experience, training, labs, clinical trials etc etc. The other little more than a database.
- throwawaymaths 2y ago
  yeah i should have said ashkenazi instead of mennonite, but i didn't want to come off as or attract a certain type of comment. this is a real thing. Gaucher's disease, while anyone can get it in principle, is almost entirely a disease that afflicts ashkenazim. the treatment is cerezyme, which is one of the most expensive drugs, and you must take it for life. and you missed the comment about sickle cell (only affects west africans and people of west african descent). which is now curable, but VERY expensive to cure.
  - jrflowers 2y ago
    I didn’t miss anything. You can substitute in any real or imaginary rare and expensive disease if you want to define “healthcare” as something that excludes the general ability to see doctors and receive treatment for common illnesses and injuries. If you’re dead set on arguing about an arbitrary imaginary definition of a word, the world is your oyster. You can say sickle cell or Methuselah Syndrome or Tandy’s Malady, it’s all gravy if you can convince your mark that whatever you’re talking about is the same thing as the broad concept of healthcare.
    - throwawaymaths 2y ago
      what does it mean if healthcare doesn't include the corner cases though? where do you draw the line? is cancer treatment healthcare? what if you have a rare cancer? im not the one arguing from a made up definition here. almost ANYONE would consider cancer, rare cancer, sickle cell treatments, and gauchers treatments "healthcare". its disingenuous to put those outside the bag of things called healthcare just because its inconvenient to your worldview

jrflowers 2y ago

This is a good point. If you imagine that by healthcare people mean an imaginary expensive Mennonite disease instead of the ability to see a doctor and receive treatment for common diseases and injuries it becomes very murky indeed.

6510 2y ago
Combining the two seems a design flaw. The one requires research, experience, training, labs, clinical trials etc etc. The other little more than a database.
throwawaymaths 2y ago
yeah i should have said ashkenazi instead of mennonite, but i didn't want to come off as or attract a certain type of comment. this is a real thing. Gaucher's disease, while anyone can get it in principle, is almost entirely a disease that afflicts ashkenazim. the treatment is cerezyme, which is one of the most expensive drugs, and you must take it for life. and you missed the comment about sickle cell (only affects west africans and people of west african descent). which is now curable, but VERY expensive to cure.
- jrflowers 2y ago
  I didn’t miss anything. You can substitute in any real or imaginary rare and expensive disease if you want to define “healthcare” as something that excludes the general ability to see doctors and receive treatment for common illnesses and injuries. If you’re dead set on arguing about an arbitrary imaginary definition of a word, the world is your oyster. You can say sickle cell or Methuselah Syndrome or Tandy’s Malady, it’s all gravy if you can convince your mark that whatever you’re talking about is the same thing as the broad concept of healthcare.
  - throwawaymaths 2y ago
    what does it mean if healthcare doesn't include the corner cases though? where do you draw the line? is cancer treatment healthcare? what if you have a rare cancer? im not the one arguing from a made up definition here. almost ANYONE would consider cancer, rare cancer, sickle cell treatments, and gauchers treatments "healthcare". its disingenuous to put those outside the bag of things called healthcare just because its inconvenient to your worldview