3 ms·

I have a genetic partial immunodeficiency (PNP Deficiency) and I constantly get fungal infections. Living in warm, humid climates is a challenge for me. Readi

I have a genetic partial immunodeficiency (PNP Deficiency) and I constantly get fungal infections. Living in warm, humid climates is a challenge for me. Reading just the beginning of that article "she experienced chronic pain, digestive problems and a cardiac arrhythmia", well, that is my life. I constantly have minor aspergillosis, and I have some lung nodules from some past fungal infections as well. Keeping the microbiome under control is all about a healthy immune system. But since my disorder affected my mental state they just labeled me as a psychiatric case and did not look any further, If anyone here is a doctor, please do not give up on psychiatric patients. Thanks. Interesting case here: Aspergillosis of the central nervous system in a previously healthy patient that simulated Creutzfeldt–Jakob disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5180434/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5180434/ "He was admitted to the hospital with an occipital headache which he had endured for 2 months. For over 1 and a half months, he had also experienced behavioral disorders and a disruption of higher mental functions. He had retrograde and anterograde amnesia with both echolalia and the presence of visual hallucinations. "

FollowingTheDao 2y ago
So, something is weird here, just want to invade this thread and ask HN if there should be a change. I literally have no idea why someone would downvote this comment. But someone did. This does not bother my ego, it bothers my sensibilities. So, maybe we should not allow downvotes unless someone comments on why they thing the comment is negative. No need to do this for upvotes because there is no need to comment on things you agree with. Downvoting without commenting leads to suppression without justification which can be bias or outright manipulation. Or maybe the up and downvotes are the problem?
- snapcaster 2y ago
  Or maybe your reaction to this downvote is the problem?
  - foobarbecue 2y ago
    Down voting parent because it is entirely unproductive -- combative, with no attempt to explain itself.
    - FollowingTheDao 2y ago
      Ha! Thanks! Nice! So I want to add as well, why just can I not down vote someone who makes a comment under mine but I can still up vote them? Why does my down vote not count when in this case? To me it seems to make HN favor bias instead of new ideas (which may be right or wrong, but without
- ajb 2y ago
  You have a point, but often it seems that if a comment got a downvote because some rando took exception to it without a good reason; then the crowd will vote it back up fairly soon. And indeed, your comment is not grey at the time of writing. I personally am not a very consistent upvoter unless either a) the comment was amazing or b) it looks unfairly downvoted.
- foobarbecue 2y ago
  I think sometimes these are accidental. When using HN on mobile, the up/down widget is so tiny that it's very easy to hit down when you mean to hit up.
- hanniabu 2y ago
  From my experience with making comments connecting guy problems to other illnesses, I think the issue is HN hates anecdotal reports and especially when it contradicts "science". I put that in quotes because we barely study the microbiome as the root cause for many issues (incredibly difficult to isolate variables) and there's constantly reports of academic malfeasance. As time goes on we also see the microbiome is responsible in things like Alzheimer's and Parkinson's. But after every new discovery if you try to insinuate there's others, people will say "no no, it's just there's nothing else has to do with that"... intil the next discovery that was only found because they decided to actually invest money into researching it.
tunn3l 2y ago
Hey! Reminds me a bit of myself. After 2 COVID infections and 3 vaccines, I began experiencing digestive problems, sleep disturbance, fatigue and severe brain fog. I also was often dismissed by the doctors as simply being depressed. But I now know that I have long COVID. The fight against it is still ongoing and you can read about my struggle with it here: https://tunn3l.pro https://tunn3l.pro. I'm currently working with my girlfriend on a sticker campaign to educate people on these illnesses (esp. me/cfs) in order to remove the Stigmatisation that many patients with similar symptoms expierience.

FollowingTheDao 2y ago

So, something is weird here, just want to invade this thread and ask HN if there should be a change. I literally have no idea why someone would downvote this comment. But someone did. This does not bother my ego, it bothers my sensibilities. So, maybe we should not allow downvotes unless someone comments on why they thing the comment is negative. No need to do this for upvotes because there is no need to comment on things you agree with. Downvoting without commenting leads to suppression without justification which can be bias or outright manipulation. Or maybe the up and downvotes are the problem?

snapcaster 2y ago
Or maybe your reaction to this downvote is the problem?
- foobarbecue 2y ago
  Down voting parent because it is entirely unproductive -- combative, with no attempt to explain itself.
  - FollowingTheDao 2y ago
    Ha! Thanks! Nice! So I want to add as well, why just can I not down vote someone who makes a comment under mine but I can still up vote them? Why does my down vote not count when in this case? To me it seems to make HN favor bias instead of new ideas (which may be right or wrong, but without
ajb 2y ago
You have a point, but often it seems that if a comment got a downvote because some rando took exception to it without a good reason; then the crowd will vote it back up fairly soon. And indeed, your comment is not grey at the time of writing. I personally am not a very consistent upvoter unless either a) the comment was amazing or b) it looks unfairly downvoted.
foobarbecue 2y ago
I think sometimes these are accidental. When using HN on mobile, the up/down widget is so tiny that it's very easy to hit down when you mean to hit up.
hanniabu 2y ago
From my experience with making comments connecting guy problems to other illnesses, I think the issue is HN hates anecdotal reports and especially when it contradicts "science". I put that in quotes because we barely study the microbiome as the root cause for many issues (incredibly difficult to isolate variables) and there's constantly reports of academic malfeasance. As time goes on we also see the microbiome is responsible in things like Alzheimer's and Parkinson's. But after every new discovery if you try to insinuate there's others, people will say "no no, it's just there's nothing else has to do with that"... intil the next discovery that was only found because they decided to actually invest money into researching it.

tunn3l 2y ago

Hey! Reminds me a bit of myself. After 2 COVID infections and 3 vaccines, I began experiencing digestive problems, sleep disturbance, fatigue and severe brain fog. I also was often dismissed by the doctors as simply being depressed. But I now know that I have long COVID. The fight against it is still ongoing and you can read about my struggle with it here: https://tunn3l.pro https://tunn3l.pro. I'm currently working with my girlfriend on a sticker campaign to educate people on these illnesses (esp. me/cfs) in order to remove the Stigmatisation that many patients with similar symptoms expierience.