5 ms·

Let them what? Enroll in a clinical trial? Buy drugs from some website? Get a PhD to try and cure their own disease? https://www.wired.com/story/sleep-no-mor

Let them what? Enroll in a clinical trial? Buy drugs from some website? Get a PhD to try and cure their own disease? https://www.wired.com/story/sleep-no-more-crusade-genetic-killer/ https://www.wired.com/story/sleep-no-more-crusade-genetic-ki...

wslh 2y ago
I believe the main point is to allow the patient to choose from a set of treatments. Correct me if I’m wrong, but isn’t this already happening at some level, where patients receive treatments that are in advanced stages of drug trials? I imagine there could be other options available, and many times the issues are related to logistics, bureaucracy, and corruption. For instance, many people around the world go hungry due to logistical challenges (e.g., political interference) [1]. It seems we accept the status quo, while some companies are sending cheaper spacecraft into space. [1] https://www.reddit.com/r/NoStupidQuestions/comments/zye4gm/why_hasnt_world_hunger_been_resolved_if_it_is_a/ https://www.reddit.com/r/NoStupidQuestions/comments/zye4gm/w...
- melling 2y ago
  People can enroll in clinical trials. https://clinicaltrials.gov/ https://clinicaltrials.gov/
  - wslh 2y ago
    That page is for information, not for enrolling.
    - melling 2y ago
      Each study tells if they are recruiting. Then you can drill down and see locations where they are recruiting. For example, https://clinicaltrials.gov/study/NCT05855200?locStr=New%20York,%20NY&country=United%20States&state=New%20York&city=New%20York&cond=Colon%20Cancer&rank=1 https://clinicaltrials.gov/study/NCT05855200?locStr=New%20Yo...
- baq 2y ago
  Health care is not a farmer’s market. You don’t pick from ten different kinds of potatoes. There will be tons of people with magic treatments with no statistical evidence or even fraudulent data. Snake oil, literally. Net negative for society.
  - wslh 2y ago
    Sure, but when someone reaches the final stages of life, the logic shifts. This is similar to the debate around euthanasia: do individuals have the right to end their lives or choose alternative treatments, even without strong statistical backing? Your comment also raises another important question: does the "net negative for society" truly matter in these cases? That's a political perspective, and like euthanasia, it's subject to debate.
    - baq 2y ago
      I respectfully disagree. Selling desperate people fraudulent stuff for real money will never not be net negative for society in my view.
      - wslh 2y ago
        I am firmly against selling fraudulent products to people, but I also believe there are ways to introduce unconventional treatments, like those from an 'irreverent Dr. House.'. I think regulations should evolve to keep pace with the acceleration of science, as seen when the COVID vaccine was developed swiftly in response to urgent needs.

wslh 2y ago

I believe the main point is to allow the patient to choose from a set of treatments. Correct me if I’m wrong, but isn’t this already happening at some level, where patients receive treatments that are in advanced stages of drug trials? I imagine there could be other options available, and many times the issues are related to logistics, bureaucracy, and corruption. For instance, many people around the world go hungry due to logistical challenges (e.g., political interference) [1]. It seems we accept the status quo, while some companies are sending cheaper spacecraft into space. [1] https://www.reddit.com/r/NoStupidQuestions/comments/zye4gm/why_hasnt_world_hunger_been_resolved_if_it_is_a/ https://www.reddit.com/r/NoStupidQuestions/comments/zye4gm/w...

melling 2y ago
People can enroll in clinical trials. https://clinicaltrials.gov/ https://clinicaltrials.gov/
- wslh 2y ago
  That page is for information, not for enrolling.
  - melling 2y ago
    Each study tells if they are recruiting. Then you can drill down and see locations where they are recruiting. For example, https://clinicaltrials.gov/study/NCT05855200?locStr=New%20York,%20NY&country=United%20States&state=New%20York&city=New%20York&cond=Colon%20Cancer&rank=1 https://clinicaltrials.gov/study/NCT05855200?locStr=New%20Yo...
baq 2y ago
Health care is not a farmer’s market. You don’t pick from ten different kinds of potatoes. There will be tons of people with magic treatments with no statistical evidence or even fraudulent data. Snake oil, literally. Net negative for society.
- wslh 2y ago
  Sure, but when someone reaches the final stages of life, the logic shifts. This is similar to the debate around euthanasia: do individuals have the right to end their lives or choose alternative treatments, even without strong statistical backing? Your comment also raises another important question: does the "net negative for society" truly matter in these cases? That's a political perspective, and like euthanasia, it's subject to debate.
  - baq 2y ago
    I respectfully disagree. Selling desperate people fraudulent stuff for real money will never not be net negative for society in my view.
    - wslh 2y ago
      I am firmly against selling fraudulent products to people, but I also believe there are ways to introduce unconventional treatments, like those from an 'irreverent Dr. House.'. I think regulations should evolve to keep pace with the acceleration of science, as seen when the COVID vaccine was developed swiftly in response to urgent needs.