Oh boy, so familiar. I have Complex Regional Pain Syndrome, which is another CNS sensitised pain syndrome. "localised" for CRPS is usually a whole limb though

Oh boy, so familiar. I have Complex Regional Pain Syndrome, which is another CNS sensitised pain syndrome. "localised" for CRPS is usually a whole limb though. It's hard to explain how fully mind-consuming neuropathy is, as most people don't get much more than a toothache or a sciatica flare (which are bad enough, but usually "short" lived). I've had an aweful lot of procedures and meds over 30 years, over 200, including 12 spinal procedures in 12 weeks when an attempt to deliver steroids to the C7 dorsal horn tore my dura mater. Very unpleasant. It's really hard, as you say, to find good medical practitioners when you've got chronic nerve pain. They have to understand the relationship between hyperalgesia, allodynia (things that should not hurt hurting like crazy), movement (and lack of same) and meds, physio and psychs. Other injuries get involved once your brain is programmed to hurt you, and post surgical care involves more hard drugs to avoid sensitisation, leading to more complex drug tapering to get off the damn opioids (which only make chronic nerve pain worse paradoxically). You say "I'm at my wit's end", and I've been there, past it and back again. You need to see a pain psychologist, a specialist psych. They can teach you "Jedi mind tricks" that may work for you. Things like how to focus your conciousnes into a bit that's NOT hurting. How to use disassociation to help getting day-to-day tasks done when you just want to curl up in a ball and cry. I also strongly suggest you get in touch with other chronic pain patients. It's incredibly helpful to know you're not a weak freak who is a wimp and a weakling. To hear that other people have the same struggles. And to hear strategies for doing things that don't hurt as much. Here in Brisbane people used to meet once a year in King George Square, for "Colour the World Orange" day. Three of these people are now friends who know what I mean by "it's not a good day". I found actually meeting other sufferers in the flesh to reinforce knowing that I'm not alone with this curse, other people struggle too. And one from that group is in remission. We're all living vicariously through her, as this gives hope. Hope is what we all need.