4 ms·
Don't want to go too off-topic but: Why does this has to be so hard? I mean what if the regulators went the opposite approach: make ALL the data publicly avail
by can16358p 2y ago
Don't want to go too off-topic but:
Why does this has to be so hard? I mean what if the regulators went the opposite approach: make ALL the data publicly available by anonymizing it.
What privacy concerns would anyone have if the whole data is completely anonymized? Wouldn't it create far more benefit by accelerating innovation in healthcare? I strongly believe the privacy concerns (which shouldn't exist after stripping out any PII) are outweighed by an order of magnitude by the upsides, which are literally saving millions of lives in the longer term.
But again, regulation, as always, cripple innovation, this time slowing down developments that would literally save lives. Great.
- defrost 2y agoWithout getting into the weeds; privacy concerns remain after "stripping out any PII" simply due to the power of post analysis and combining masses of data looking for things that line up. There are various long articles on this and it remains the case that patients have a right to confidentiality.