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Isn't this what the "Right to try" laws are designed for? https://en.wikipedia.org/wiki/Right-to-try_law https://en.wikipedia.org/wiki/Right-to-try_law Althoug
by y-c-o-m-b 2y ago
Isn't this what the "Right to try" laws are designed for? https://en.wikipedia.org/wiki/Right-to-try_law https://en.wikipedia.org/wiki/Right-to-try_law
Although it does seem like many companies are still not allowing this. I don't know much on the topic and I'm not sure why (financial reasons perhaps?) they'd refuse, but I've always found it absurd that we can poison ourselves to death (literally) with all sorts of substances legally, but experimentation with life saving methods are restricted. I've seen some very strange arguments against the experimentation like "well they could die sooner!" - yeah, but that's up to the person to decide, just like all other decisions they've made preceding it. A patient has the right not to choose any treatment at all, that could definitely make the die sooner. Why is this where the line is drawn for some people? It seems arbitrary.
- nonrandomstring 2y agoI wasn't aware of this progress. Thanks for the link. It's definitely an ethical hot potato. My concern would always be around pressure, and being sure that a choice really is a choice.
- mlyle 2y agoThe research teams want to get their drug approved so it can help many people. This means proving it is safe and effective. Unfortunately, using it in a non-study context risks a whole lot of confusion-- if the marginal, near-death case that wouldn't qualify for your trial dies in a weird way, what do you do? Not to mention that prior to approval, there are no economies of scale in production.