3 ms·
Many ME experts are doing both. RECOVER is considering adding ME/CFS arms to its huge clinical trial platform. UCSF just added ME/CFS as a priority in their LII
by thenerdhead 2y ago
Many ME experts are doing both. RECOVER is considering adding ME/CFS arms to its huge clinical trial platform. UCSF just added ME/CFS as a priority in their LIINC program.
SARS-CoV-2 therapeutics won’t work on both but immune cell based ones may given they haven’t been tested in either yet.
Both suggest a root cause of persistent viral antigen. Time will tell what works here.
- Elinvynia 2y agoRECOVER is the biggest scam when it comes to research unfortunately. 90% of their studies are focusing on various form of "brain exercises", CBT therapy and exercise therapy. Things that are not only proven to not work, but actually proven to harm people with ME/CFS (of which long covid patients make up a large amount).
- thenerdhead 2y agoThey fund and do a lot of work beyond the horrible choices for initial RCTs. This fall we should hopefully see actual pharmaceutical interventions and a plethora of research they’ve been publishing. The more important parts of their programs are the omics and tissue biopsy programs. May they hopefully turn the ship…