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We don’t entirely understand it which is precisely why it’s important to have a specialist you can discuss this type of thing with. That specialist has access t

We don’t entirely understand it which is precisely why it’s important to have a specialist you can discuss this type of thing with. That specialist has access to your full medical history as well as the ability to run tests against any things you may decide to try. Legitimate medical and scientific breakthroughs don’t get leaked in conspiracy theory forums or on podcasts. Blindly trying something a Joe Rogan guest swears is a natural cure that Big Pharma is suppressing is a bad idea. It’s the kind of decision making that can cause something manageable to become significantly worse… look at Steve Jobs. Trust your doctors, believe the science.

JohnMakin 2y ago
> Trust your doctors, believe the science. Don’t really disagree with the rest of your post but as a sufferer I’ve dealt with dozens of doctors now that casually dismiss your very real symptoms or say stuff like “it’s just stress” rather than drilling down to the core of the problem. People become desperate and will try anything in this environment, so it isn’t really unwelcome to a sufferer to hear tips like this other than when people say dumb stuff like “have you tried identifying a trigger?” No, I haven’t ever thought of that, I just shovel whatever crap down my gullet and dump liters of blood out my ass without a second thought. of course I’ve tried identifying triggers and if I already knew the trigger I wouldn’t be suffering, would I?
mrroryflint 2y ago
Have you seen some of the nutrition "drinks" and replacement shakes that MANY (including the NHS) recommend for IBD sufferers? It's utter insanity.
- jononomo 2y ago
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        93po 2y ago
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        dang 2y ago
        Please see https://news.ycombinator.com/item?id=40627655 https://news.ycombinator.com/item?id=40627655. If you keep posting like this, we will have to ban you.
        dang 2y ago
        Please don't attack another user like this, and please don't perpetuate flamewars on HN, no matter how wrong someone else is or you feel they are. It's not what this site is for, and destroys what it is for. If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.

JohnMakin 2y ago

> Trust your doctors, believe the science. Don’t really disagree with the rest of your post but as a sufferer I’ve dealt with dozens of doctors now that casually dismiss your very real symptoms or say stuff like “it’s just stress” rather than drilling down to the core of the problem. People become desperate and will try anything in this environment, so it isn’t really unwelcome to a sufferer to hear tips like this other than when people say dumb stuff like “have you tried identifying a trigger?” No, I haven’t ever thought of that, I just shovel whatever crap down my gullet and dump liters of blood out my ass without a second thought. of course I’ve tried identifying triggers and if I already knew the trigger I wouldn’t be suffering, would I?

mrroryflint 2y ago

Have you seen some of the nutrition "drinks" and replacement shakes that MANY (including the NHS) recommend for IBD sufferers? It's utter insanity.

jononomo 2y ago
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        93po 2y ago
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        dang 2y ago
        Please see https://news.ycombinator.com/item?id=40627655 https://news.ycombinator.com/item?id=40627655. If you keep posting like this, we will have to ban you.
      - dang 2y ago
        Please don't attack another user like this, and please don't perpetuate flamewars on HN, no matter how wrong someone else is or you feel they are. It's not what this site is for, and destroys what it is for. If you wouldn't mind reviewing https://news.ycombinator.com/newsguidelines.html https://news.ycombinator.com/newsguidelines.html and taking the intended spirit of the site more to heart, we'd be grateful.