4 ms·
If I was desperate and suffering from something as serious as IBD, I would be happy for people to casually suggest trying something that has shown to work for o
by 93po 2y ago
If I was desperate and suffering from something as serious as IBD, I would be happy for people to casually suggest trying something that has shown to work for others anecdotally. Especially given the context of this very article, which shows we don't entirely understand it .
- covercash 2y agoWe don’t entirely understand it which is precisely why it’s important to have a specialist you can discuss this type of thing with. That specialist has access to your full medical history as well as the ability to run tests against any things you may decide to try. Legitimate medical and scientific breakthroughs don’t get leaked in conspiracy theory forums or on podcasts. Blindly trying something a Joe Rogan guest swears is a natural cure that Big Pharma is suppressing is a bad idea. It’s the kind of decision making that can cause something manageable to become significantly worse… look at Steve Jobs. Trust your doctors, believe the science.
- JohnMakin 2y ago> Trust your doctors, believe the science. Don’t really disagree with the rest of your post but as a sufferer I’ve dealt with dozens of doctors now that casually dismiss your very real symptoms or say stuff like “it’s just stress” rather than drilling down to the core of the problem. People become desperate and will try anything in this environment, so it isn’t really unwelcome to a sufferer to hear tips like this other than when people say dumb stuff like “have you tried identifying a trigger?” No, I haven’t ever thought of that, I just shovel whatever crap down my gullet and dump liters of blood out my ass without a second thought. of course I’ve tried identifying triggers and if I already knew the trigger I wouldn’t be suffering, would I?
- mrroryflint 2y agoHave you seen some of the nutrition "drinks" and replacement shakes that MANY (including the NHS) recommend for IBD sufferers? It's utter insanity.