5 ms·

My son has Crohn’s disease. He was very thin and underweight and under height compared to his peers. My wife and I tried to understand what we did wrong raising

by hi41 2y ago

My son has Crohn’s disease. He was very thin and underweight and under height compared to his peers. My wife and I tried to understand what we did wrong raising our son. Did we feed him too much cheerios. Did we give him too much sugar, bread. Somehow the modern diet is not suiting my son. I feel very guilty for giving the chronic disease to my son with the food choices I made as a parent.

ceejayoz 2y ago
Nothing in this research appears to indicate fault of any kind; rather, a genetic cause. > Lee’s research team “stumbled” on the discovery after investigating a “gene desert”, a stretch of DNA on chromosome 21 that does not code for proteins, which has previously been linked to IBD and other autoimmune diseases. Writing in Nature, they describe how they found a section of DNA that behaves like a volume control for nearby genes. This “enhancer” was seen only in immune cells called macrophages where it boosted a gene called ETS2 and ramped up the risk of IBD. As parents we make plenty of real mistakes; blaming ourselves for unavoidable stuff isn't worth adding to the pile.
Projectiboga 2y ago
Don't feel bad there are huge corporations and even the government pushing some foods. And the risk gene is rare, like less than 2% Have you tried getting your son off all milk products for a few weeks? And really try and avoid non organic wheat, as it is harvested with roundup which is implicated with leaky gut syndrome.
- Turing_Machine 2y ago
  > And really try and avoid non organic wheat, as it is harvested with roundup That appears to overwhelmingly not be the case, at least in the United States. https://www.snopes.com/fact-check/wheat-toxic/ https://www.snopes.com/fact-check/wheat-toxic/
extragood 2y ago
I have Crohn 's disease and it's never occurred to me to fault my parents. It is a genetic disease, and I can only hope that the doctors you've worked with have helped you to understand the basics so you can educate yourself and help your son. There's been a lot of really encouraging progress in the 15+ years since my diagnosis, but there are still a lot of unknowns. I got very little support in the dietary side of things other than the infamous elimination diet approach. It took a while for me to dial it in, but I did and am very rarely sick these days, now that I've discovered my own food sensitivities. As much as you may want to solve this problem for him, it will take an immense amount of maturity on his part to want to discover and understand his limitations and to create and stick to a sustainable lifestyle.
surfsvammel 2y ago
I have IBD. Any sensible doctor will tell you that there seem to be no link between diet and IBD, apart from certain food possibly aggravating symptoms. No use whatsoever to blame oneself for something like this.
- kunai 2y ago
  The idea behind there being no link between diet and IBD is nonsensical and patently unscientific. From a layman's point of view, IBD is a single disease. However, in reality, it's an umbrella term for a disease with a common set of symptoms and histological changes that can have a variety of underlying etiologies. Some people are more genetically susceptible, with family histories; others with no family history can undergo changes in gut microbiota composition, genome methylation, among other environmental factors that influence development and progression of the disease. There are a bevy of peer-reviewed studies that show links between better diets/exercise and an increase in SCFA-producing microbiome components, which are known to suppress inflammatory cytokines and improve innate immune mucosal defense systems and free radical scavenging, promoting gut healing. On the flip side, plenty of people with poor diets and a lack of fiber are at a far higher risk of developing IBD or some other autoimmune disease (like SLE or RA), even certain cancers. It's why one of the most common strategies to address mild IBD and IBS cases is to begin an elimination diet and see which foods are triggers for inflammation. You are correct that for many, diet isn't the reason why people have IBD. But it does play a huge role in symptom burden and the overall severity and prognosis of the condition. This isn't even considering the effect of environmental contaminants (such as PFOA and BPA) on IBD development, which has been well-known for over a decade now. Ignoring science for a bit, just from the perspective of common sense, the idea of what you put in your body not affecting you is absurd and ridiculous. It's an idea pushed by gastroenterologists who don't want to risk upset patients who would rather not change their entire diet and lifestyle to mitigate their disease, for a small portion of whom the changes will not work anyways due to an underlying genetic component to the disease. Still, there's nothing to lose and everything to gain from adopting a healthier lifestyle.
  - spondylosaurus 2y ago
    IBD =/= IBS. IBS is a common set of symptoms. IBD is short for inflammatory bowel disease, and it's an umbrella term for Crohn's disease and ulcerative colitis (UC).
Keyframe 2y ago
is it confirmed? it can be celiac disease which can be managed.
meowster 2y ago
Did you feed him what millions of other kids also ate? Since millions of other kids don't have Crohn's disease, I can't imagine that's the cause. Happiness does not come from beating yourself up, but can come embracing and making the best of a situation.
rmbyrro 2y ago
Have you read the book "It Starts With Food"? I follow it 100%, mine and my son's lives have changed for the better in unbelievable ways.
exolymph 2y ago
There are millions of kids out there eating nothing but toaster waffles who don't have Crohn's. Your son's disease is not your fault — it's bad luck. It's certainly possible that eating a specific way could help manage his symptoms, but that's different from his diet (past or current) being the root cause.
adamredwoods 2y ago
I'm sorry your son has Crohn's disease. You did nothing wrong. I don't enjoy how people immediately blame themselves or others for "eating wrong foods" when they encounter a new disease. Some diseases will be caused by diet (or viruses, or bacteria), but many others are not. Metabolic versus genetic causes. Consider Celiac's disease: genetic or metabolic? It's a genetic deficiency exacerbated by a metabolic pathway. Also watch for lactose intolerance, it's easily controlled but can cause discomfort when eating (I'm not saying your son has exclusively this, but rather in addition to).
thrwwXZTYE 2y ago
It's not diet. It's genes and stress.
bwb 2y ago
Its genetic as well, and in general they just have no idea.
jononomo 2y ago
[flagged]
Spod_Gaju 2y ago
[dead]

by hi41 2y ago

ceejayoz 2y ago

Nothing in this research appears to indicate fault of any kind; rather, a genetic cause. > Lee’s research team “stumbled” on the discovery after investigating a “gene desert”, a stretch of DNA on chromosome 21 that does not code for proteins, which has previously been linked to IBD and other autoimmune diseases. Writing in Nature, they describe how they found a section of DNA that behaves like a volume control for nearby genes. This “enhancer” was seen only in immune cells called macrophages where it boosted a gene called ETS2 and ramped up the risk of IBD. As parents we make plenty of real mistakes; blaming ourselves for unavoidable stuff isn't worth adding to the pile.

Projectiboga 2y ago

Don't feel bad there are huge corporations and even the government pushing some foods. And the risk gene is rare, like less than 2% Have you tried getting your son off all milk products for a few weeks? And really try and avoid non organic wheat, as it is harvested with roundup which is implicated with leaky gut syndrome.

Turing_Machine 2y ago
> And really try and avoid non organic wheat, as it is harvested with roundup That appears to overwhelmingly not be the case, at least in the United States. https://www.snopes.com/fact-check/wheat-toxic/ https://www.snopes.com/fact-check/wheat-toxic/

extragood 2y ago

I have Crohn 's disease and it's never occurred to me to fault my parents. It is a genetic disease, and I can only hope that the doctors you've worked with have helped you to understand the basics so you can educate yourself and help your son. There's been a lot of really encouraging progress in the 15+ years since my diagnosis, but there are still a lot of unknowns. I got very little support in the dietary side of things other than the infamous elimination diet approach. It took a while for me to dial it in, but I did and am very rarely sick these days, now that I've discovered my own food sensitivities. As much as you may want to solve this problem for him, it will take an immense amount of maturity on his part to want to discover and understand his limitations and to create and stick to a sustainable lifestyle.

surfsvammel 2y ago

I have IBD. Any sensible doctor will tell you that there seem to be no link between diet and IBD, apart from certain food possibly aggravating symptoms. No use whatsoever to blame oneself for something like this.

kunai 2y ago
The idea behind there being no link between diet and IBD is nonsensical and patently unscientific. From a layman's point of view, IBD is a single disease. However, in reality, it's an umbrella term for a disease with a common set of symptoms and histological changes that can have a variety of underlying etiologies. Some people are more genetically susceptible, with family histories; others with no family history can undergo changes in gut microbiota composition, genome methylation, among other environmental factors that influence development and progression of the disease. There are a bevy of peer-reviewed studies that show links between better diets/exercise and an increase in SCFA-producing microbiome components, which are known to suppress inflammatory cytokines and improve innate immune mucosal defense systems and free radical scavenging, promoting gut healing. On the flip side, plenty of people with poor diets and a lack of fiber are at a far higher risk of developing IBD or some other autoimmune disease (like SLE or RA), even certain cancers. It's why one of the most common strategies to address mild IBD and IBS cases is to begin an elimination diet and see which foods are triggers for inflammation. You are correct that for many, diet isn't the reason why people have IBD. But it does play a huge role in symptom burden and the overall severity and prognosis of the condition. This isn't even considering the effect of environmental contaminants (such as PFOA and BPA) on IBD development, which has been well-known for over a decade now. Ignoring science for a bit, just from the perspective of common sense, the idea of what you put in your body not affecting you is absurd and ridiculous. It's an idea pushed by gastroenterologists who don't want to risk upset patients who would rather not change their entire diet and lifestyle to mitigate their disease, for a small portion of whom the changes will not work anyways due to an underlying genetic component to the disease. Still, there's nothing to lose and everything to gain from adopting a healthier lifestyle.
- spondylosaurus 2y ago
  IBD =/= IBS. IBS is a common set of symptoms. IBD is short for inflammatory bowel disease, and it's an umbrella term for Crohn's disease and ulcerative colitis (UC).

Keyframe 2y ago

is it confirmed? it can be celiac disease which can be managed.

meowster 2y ago

Did you feed him what millions of other kids also ate? Since millions of other kids don't have Crohn's disease, I can't imagine that's the cause. Happiness does not come from beating yourself up, but can come embracing and making the best of a situation.

rmbyrro 2y ago

Have you read the book "It Starts With Food"? I follow it 100%, mine and my son's lives have changed for the better in unbelievable ways.

exolymph 2y ago

There are millions of kids out there eating nothing but toaster waffles who don't have Crohn's. Your son's disease is not your fault — it's bad luck. It's certainly possible that eating a specific way could help manage his symptoms, but that's different from his diet (past or current) being the root cause.

adamredwoods 2y ago

I'm sorry your son has Crohn's disease. You did nothing wrong. I don't enjoy how people immediately blame themselves or others for "eating wrong foods" when they encounter a new disease. Some diseases will be caused by diet (or viruses, or bacteria), but many others are not. Metabolic versus genetic causes. Consider Celiac's disease: genetic or metabolic? It's a genetic deficiency exacerbated by a metabolic pathway. Also watch for lactose intolerance, it's easily controlled but can cause discomfort when eating (I'm not saying your son has exclusively this, but rather in addition to).

thrwwXZTYE 2y ago

It's not diet. It's genes and stress.

bwb 2y ago

Its genetic as well, and in general they just have no idea.

jononomo 2y ago

[flagged]

Spod_Gaju 2y ago

[dead]