2 ms·
So sorry to hear the way this affected you. My wife had/has long covid - as I listened to people she met online with LC and a couple of people we knew already,
by ljf 3y ago
So sorry to hear the way this affected you. My wife had/has long covid - as I listened to people she met online with LC and a couple of people we knew already, what fascinated me was the 'menu' of symptoms that people got and just how different they could be, though overlapping.
She too had the POTS and range of aches and issues. While she's largely recovered now, she still has to pace herself.
Really hoping this is better understood in the future, and that we are better able to treat people with it.
- SOLAR_FIELDS 3y agoI’m basically 100% fine now, but thanks. I just wish I could have told the me that existed right when I started having this happen that it would eventually get better. At the time it was very scary thinking that I might have to deal with POTS or shortness of breath for the rest of my life or that my organs were permanently damaged in some way. I find myself more fortunate than most in that I never really had the fatigue and brain fog issues that plagued and possibly still plague many others. I could definitely see those things being quite detrimental to my mental health in the long term if I had them.
- ljf 3y agoTotally this - am many times as I said 'you will get better from this' - we both knew that was just a hope. She's so much better now, and getting rid of POTS symptoms was a massive turning point for her, esp as we kept being told that no one recovers from POTS. And yes, a friend of mine (male model in his 30s) who also had LC, could cycle for hours (no physical fatigue), but mental tasks totally wiped him out.