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Interesting note about Trikafta and other advancements in cystic fibrosis: the Make a Wish Foundation announced that children with CF now no longer automaticall
by bdcravens 3y ago
Interesting note about Trikafta and other advancements in cystic fibrosis: the Make a Wish Foundation announced that children with CF now no longer automatically qualify for their program due to the advancements in care.
https://wish.org/cf-update https://wish.org/cf-update
- therein 3y agoMy friend that had CF was eligible. He was asked by the foundation what he wanted when he was 5-6 years old. He said he wanted to go Zorbing in Australia. They dragged it until he was 18. He always jokingly said "make a wish foundation is waiting, hoping I'll die". He finally got to go Zorbing when he was 19. Passed away a few years later. Not surprised the foundation jumped on Trikafta to remove eligibility.
- ForHackernews 3y agoThis is also mentioned in the article: > Recently, Make-A-Wish announced that children with CF would no longer automatically be eligible for the program, because “life-changing advances” had radically improved the outlook for them. I know this is a long piece, but half the comments in this thread seem like people didn't even bother to read it before commenting...
- tnias23 3y agoThere’s a sign-up process required.
- ForHackernews 3y agoAh! Fair enough. I assumed HN links bypassed the paywall.
- bdcravens 3y agoFair enough. As someone who takes Trikafta, I skimmed the article since it wasn't news to me :-)