3 ms·
Very accurate. The way I try to describe it, like a worn out recharchable battery- only charges to 80%, runs down quickly when you try to use it and takes ages
by 8A51C 3y ago
Very accurate. The way I try to describe it, like a worn out recharchable battery- only charges to 80%, runs down quickly when you try to use it and takes ages to charge back up again.
This is in some way trivialising the suffering, but I find helps people understand a little what it's like. At it's worst whilst I might be able to get out of bed and use the toilet, it takes a level of forethought, planning and effort that is unreasonable.
Suffered with fatigue since stem cell transplant in 2011.
- freedomben 3y agoYes, people don't understand that even very basic self care like brushing your teeth or going to the can be completely overwhelming. Just receiving a text or an email when you're feeling can be crushing
- quickthrower2 3y agoSorry to hear that. I am embarrassing mild compared to most stories I read on r/cfs (which is why I just lurk) It has taken years to build back up to almost full time work without it being a boom/bust affair. I can’t imagine the more severe cases because you need energy to manage the problem, like a catch 22.