4 ms·
Ehh... I can tell you reasons why that won't always work..... First off, sensitivity to stimuli. I see someone wearing a wristband/watch in one of the pictures
by WWLink 3y ago
Ehh... I can tell you reasons why that won't always work.....
First off, sensitivity to stimuli. I see someone wearing a wristband/watch in one of the pictures in the article. Some autistic people are super sensitive to wearing things like watches, necklaces, bracelets, anklets, headbands, etc. Oh wait, sensor gear is almost always one of those things...
The other is that as much as people talk about repetitiveness and rituals, I can tell you that sometimes there is no pattern! My brother who is most strongly on the spectrum, is older than I am... so I've known him my entire life. I have a pretty good idea what he likes, doesn't like, and what stresses him. There are still occasional days where he has a meltdown and I sit there and go through my 'notes' and can't figure it out.
One time I was trying to recount this experience to his doctor and she said it sounded like I was looking for signals in a field of noise. She was right. Sometimes it's just too random to really know.
I imagine it's easier if you have a willing subject who can communicate with you why they got upset after the fact. Unfortunately for my brother, "why" is a question he doesn't like answering - and when he (rarely) does, the answers are usually not very credible like "Why were you so angry?" "because you haven't taken me out shopping on Saturday yet!" (and it's Tuesday and we just went Saturday)
(The funnier part is he'll often ask me "why" I do things lol :D)
Anyway, back to the article. I don't like it. Inpatient psychiatric settings are already a scary sorta place. You get locked in a building you might not be familiar with, might have to wear different clothing (not usually but sometimes), be exposed to different noises and scents and temperature... and be around other people, also with other issues.. Being forced to wear sensors sounds like it'd add to the awfulness. It's also not a great environment to observe someone because they might just "shut down" from their normal behavioral patterns. AND IF THEY DON'T "SHUT DOWN" they might be encouraged to do so by getting a strong dosage of medicine.
That's not fun. I get where they're coming from - psychiatrists (that take insurance, especially state medicaid plans which most patients would probably have) are usually overworked, underpaid, and it's a stressful job where everyone's hoping for an easy fix but it's not easy.
Still, I appreciate the sacrifice the patients in those research projects are making, and the work the researchers are putting in. Especially for adults on the spectrum. There are vast vast amounts of resources expended on helping kids with autism but the moment you turn 18 it's basically "good luck lol"
- o11c 3y ago> I can tell you that sometimes there is no pattern! As an autist: you don't see the patterns that you've disrupted. We don't talk about most of our problems. Often it can be something like: "3 days ago, you forgot to mention ahead of time that you were going to the store. As a result, everything has been stressful and I responded badly to things that normally would've been below the alarm threshold." Generally I find that 3 days is about how long oneshot disruptions cause problems, though this is tapering. 1 day is usually enough for my coping strategies to kick in and mitigate the worst at least. Of course, ongoing problems or unrelated but coincident problems can stretch it longer.
- WWLink 3y agoI think 3 days is a reasonable look-back period for analyzing. I want my brothers (both are on the spectrum, though one is affected more than the other) to be happy and less stressed. Speaking selfishly, it... makes my life a lot easier. Honestly when I have those "what happened?" moments I can go back as far as a week or two sometimes looking for small shifts. One that really sucks for all parties is the unpredictable. Something like, the doctor being late to their appointment or our assistant we hire to help not being able to come that day (or coming late)... Or THE WEATHER MESSING PLANS UP. Especially the anticipation that weather might screw the plans up. Plans that are "we've done this for the past 26 saturdays so why can't we do it this saturday? Can't you just make it not rain or something?" :D (I am exaggerating for extra silliness) Those are the worst x_X
- Fnoord 3y ago> First off, sensitivity to stimuli. I see someone wearing a wristband/watch in one of the pictures in the article. Some autistic people are super sensitive to wearing things like watches, necklaces, bracelets, anklets, headbands, etc. Oh wait, sensor gear is almost always one of those things... Yeah, I can't wear a watch 24/7 (nor throughout the day). My skin can't handle it, I get rashes. I'd love to wear a watch throughout the day. I retry it every few years. It just doesn't work out. My wife can't deal with an electric toothbrush. I swear by it.