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Federally, health insurers cannot use this data under GINA[0] and SB41[1] in California requires explicit permission be granted by the customer in order for the
by samtho 3y ago
Federally, health insurers cannot use this data under GINA[0] and SB41[1] in California requires explicit permission be granted by the customer in order for the data to be shared with 3rd parties. In general, however, insurance companies are going to be reluctant to trust this information as it’s not established that it has real medical value outside the handful of markers we’ve clearly identified.
[0]: https://medlineplus.gov/genetics/understanding/dtcgenetictesting/dtcinsurancerisk/ https://medlineplus.gov/genetics/understanding/dtcgenetictes...
[1]: https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB41 https://leginfo.legislature.ca.gov/faces/billTextClient.xhtm...
- averageRoyalty 3y ago"Federally" doesn't matter to the 95% of us who don't live in America.
- Analemma_ 3y agoOh, it's against the law! Well that's ok then, companies never break laws. In reality, there will be (and probably already is) an impenetrable web of "data aggregators" buying genome data from other aggregators who are buying it from still other aggregators, so that the info will be thoroughly laundered by the time it actually gets to the insurance company to hike your premiums. This both obscures its true origin and lets there be a little contractor to throw under the bus when discovered and deflect blame. Don't fucking kid yourself: if personal genome data is useful, it will be used, no matter what the law says.
- infinitezest 3y agoThere is no need to break the law if your pockets are deep enough to write it yourself.