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If they go bankrupt they should destroy all the data but of course they will rather sell it to recover at least a bit of money.
by progbits 3y ago
If they go bankrupt they should destroy all the data but of course they will rather sell it to recover at least a bit of money.
- kibwen 3y agoRemember that it's good opsec to rotate your genome every six months.
- welfare 3y agoThat's hilarious. I'm imagining CRISPR as a tool to scramble your DNA every so often.
- SOVIETIC-BOSS88 3y agoThat sounds like a terrifying cyberpunk novel that I would definitely read. Although I hope the future is not that bleak.
- idatum 3y agoReminder of the film Gattaca which explored some of the risks of leaking your DNA in a future dystopia.
- paulddraper 3y agoSuch a good movie. (If a bit slow paced.)
- SOVIETIC-BOSS88 3y agoExcellent movie. Did not see it when it was released orignally, but discovered it by chance going through the tv channels. A real gem.
- seanhunter 3y agoAlso you have to have a genome with at least one uppercase, one lowercase, one number and one special character that isn’t \/‘` or ”
- ackbar03 3y agoSomeone should do a genome manager startup
- Tuna-Fish 3y agoIf they file for bankruptcy, they cannot legally destroy the data. The data is a salable asset, the law requires them to preserve it so that it can be sold and the money returned to creditors. And many of the promises they have given about it's use can and will be broken by the trustees dissolving the company. The thing you need to consider when you give data to a company is not "will these people misuse this", but "once these guys go bankrupt and sell the data to the highest bidder, can it be misused?". See, for example, how if your company holds a large mailing list, it will typically be sold to a spam operation for a few bucks. The minimum standard for giving serious personal information, like your DNA, to a company needs to be that the company receives a limited-time license to handle the data for the purposes they need to provide the service, and absolutely nothing more.
- j-wags 3y agoThis makes me wonder if there could be strong enough laws around protecting genetic info (for example penalties that pierce the corporate veil) that those with fiduciary responsibility to the company could argue that destroying the data is really in the shareholders' best interest. I'm completely uninformed in this area. Is there precedent for anything like this in the modern day?
- mjevans 3y agoUpgrade this to any medically adjacent data. ALL of the DNA data should be covered under HIPPA or something similar.
- kube-system 3y agoGenetic information is PHI and is already covered under HIPAA. The problem is that, like most companies, 23andMe isn't a HIPAA covered entity. Because they're not a healthcare provider or health insurer, it doesn't apply to them. Genetic information is also controlled by other laws such as GINA. So it is already some of the most controlled health data there is. But that's not a very high bar in the US.
- mfld 3y agoI would expect that you have a right to get your data deleted.