3 ms·

So if the real problems people are having "do not have a single simple cause", why are we calling it "Long Covid"? The name implies that there is a known cause

So if the real problems people are having "do not have a single simple cause", why are we calling it "Long Covid"? The name implies that there is a known cause, and the diagnosis IS Long Covid.

acdha 3y ago
Because diseases are complicated and your body’s response involves a number of factors. We know that there is a large group of people who had no known health conditions prior to some number of COVID cases, at which point they did have a chronic condition, and tests have failed to link it to other known diseases. This again is similar to other things - for example, arthritis has some components like age or genetic predisposition but also risk slog goes up with things like obesity, smoking, exposure to certain chemicals, or bacterial / viral infections in and so there isn’t a simple cause or effect relationship because for any given trait you can find people who have it but did not develop the condition or vice versa. What researchers have done is find correlations in large groups to identify how the many factors increase your odds of developing the disease - even if most people don’t develop it, we have a large enough population that many people will. Long COVID is similar in that they have identified risk factors like age or not being vaccinated and have some theories for the underlying mechanism and biomarkers which hopefully will make it easier for clinicians to identify patients or warn people with high risk factors. https://erictopol.substack.com/p/lighting-up-long-covid https://erictopol.substack.com/p/lighting-up-long-covid
- gitfan86 3y ago
  Correlation isn't causation. The highest risk factor of Long Covid is probably frequency of hearing about it from social media. Much like Fibromyalgia.
  - acdha 3y ago
    I would strongly suggest reading the previous link and the Science paper it leads with (https://www.science.org/doi/10.1126/science.adg7942 https://www.science.org/doi/10.1126/science.adg7942). When a large number of medical professionals say there’s something real and there are peer reviewed publications in top journals discussing options for treatment, it is highly unlikely that some rando with no relevant expertise is correct in arbitrarily dismissing it.
    - gitfan86 3y ago
      I would strongly suggest not blindly trusting "peer reviewed" and "top journals", especially on topics that are not easily provable. "We conclude that despite widespread use of narcotic drugs in hospitals, the development of addiction is rare in medical patients with no history of addiction. "https://www.nejm.org/doi/10.1056/NEJM198001103020221 https://www.nejm.org/doi/10.1056/NEJM198001103020221 "Our analyses clearly show that SARS-CoV-2 is not a laboratory construct or a purposefully manipulated virus." https://www.nature.com/articles/s41591-020-0820-9 https://www.nature.com/articles/s41591-020-0820-9

So if the real problems people are having "do not have a single simple cause", why are we calling it "Long Covid"? The name implies that there is a known cause, and the diagnosis IS Long Covid.

acdha 3y ago

Because diseases are complicated and your body’s response involves a number of factors. We know that there is a large group of people who had no known health conditions prior to some number of COVID cases, at which point they did have a chronic condition, and tests have failed to link it to other known diseases. This again is similar to other things - for example, arthritis has some components like age or genetic predisposition but also risk slog goes up with things like obesity, smoking, exposure to certain chemicals, or bacterial / viral infections in and so there isn’t a simple cause or effect relationship because for any given trait you can find people who have it but did not develop the condition or vice versa. What researchers have done is find correlations in large groups to identify how the many factors increase your odds of developing the disease - even if most people don’t develop it, we have a large enough population that many people will. Long COVID is similar in that they have identified risk factors like age or not being vaccinated and have some theories for the underlying mechanism and biomarkers which hopefully will make it easier for clinicians to identify patients or warn people with high risk factors. https://erictopol.substack.com/p/lighting-up-long-covid https://erictopol.substack.com/p/lighting-up-long-covid

gitfan86 3y ago
Correlation isn't causation. The highest risk factor of Long Covid is probably frequency of hearing about it from social media. Much like Fibromyalgia.
- acdha 3y ago
  I would strongly suggest reading the previous link and the Science paper it leads with (https://www.science.org/doi/10.1126/science.adg7942 https://www.science.org/doi/10.1126/science.adg7942). When a large number of medical professionals say there’s something real and there are peer reviewed publications in top journals discussing options for treatment, it is highly unlikely that some rando with no relevant expertise is correct in arbitrarily dismissing it.
  - gitfan86 3y ago
    I would strongly suggest not blindly trusting "peer reviewed" and "top journals", especially on topics that are not easily provable. "We conclude that despite widespread use of narcotic drugs in hospitals, the development of addiction is rare in medical patients with no history of addiction. "https://www.nejm.org/doi/10.1056/NEJM198001103020221 https://www.nejm.org/doi/10.1056/NEJM198001103020221 "Our analyses clearly show that SARS-CoV-2 is not a laboratory construct or a purposefully manipulated virus." https://www.nature.com/articles/s41591-020-0820-9 https://www.nature.com/articles/s41591-020-0820-9