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One of the catalyst for that were that insurance companies were kicking people off coverage as they knew about increased risk. I have a female family member wh
by conductr 3y ago
One of the catalyst for that were that insurance companies were kicking people off coverage as they knew about increased risk.
I have a female family member who never got a genetic cancer lab test because a positive result came with risks of her getting kicked off private insurance. Even though her sister had cancer at 30 and her paternal line had tons of history of women dying young for “woman issues” as it was called back then.
Anyway she assumed she had the genetic mutation but never could get the preventative surgery she should have because insurance wouldn’t approve it without the positive lab results confirming she was at high risk for cancer.
It’s dystopian.
- FireBeyond 3y agoAnd beyond the most obvious stuff too. I worked for a company that ran claims benefits management systems. We had regular inquiries from our customers (insurers) saying that they had genealogy databases and wanted to be able to mine not just their own systems for "increased familial risk" based on claims history, but wanted to be able to get this information from "partner" (not actual partners, just "our other customers") databases similarly. We would not, thankfully. But many of them asked. Some, repeatedly.