3 ms·
Neat that they're crafting this kind of product. But, given how easily such full sequences can plot your exact relations with any other unblinded records, this
by gojomo 3y ago
Neat that they're crafting this kind of product. But, given how easily such full sequences can plot your exact relations with any other unblinded records, this may be largely "DNA Security Theater" against the threat of their malfeasance or compromise.
Also, I can't find anywhere in the Nebula materials describing the chain-of-custody of submitted DNA, & jurisdiction(s) of the sequencing labs.
For example, if provided samples are sent outside the US for sequencing – are they? – I'd have even less confidence they'll be kept secret from local authorities.
- dannyw 3y agoEven in the US, California requires 23andme to "bank" the DNA and store it for 10 years along with the name and PII. This is available to authorities. You cannot request for this to be deleted or destroyed by law.
- collegeburner 3y agoIt's all about user privacy until the jackboots might want that data, then suddenly it's Very Important and Law Enforcement Critical!
- EarthAmbassador 3y agoThat’s outrageous. Paying for a service should not mean concurrent subscription to populating police databases. I’m a bit surprised California would permit this.
- gojomo 3y agoDo you have a reference documenting this requirement? I've not seen it reported, & when I last checked (long ago), 23andme seemed to allow a customer to decide whether their sample was retained beyond the current round of tests. And, if it were a current requirement, wouldn't this Nebula offering be prohibited in California?
- dannyw 3y agohttps://www.23andme.com/en-int/about/biobanking/#:~:text=Unless%20we%20notify%20you%20otherwise,to%20re%2Danalyze%20your%20sample https://www.23andme.com/en-int/about/biobanking/#:~:text=Unl.... https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not-for-me/ https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not... It’s a California “lab quality” law.
- gojomo 3y agoThanks, but: neither of those links say it's a California requirement, nor that it's stored with PII, nor that it's necessarily/always kept for 10 years (your original claim). Instead, it's said to be kept for at most 10 years, & even that is in a paragraph describing what happens if a customer specifically chooses optional storage! Further, if you're referencing 23andme's own privacy/terms documents, those also repeatedly pledge that samples are irreversibly destroyed upon request. So while I can still believe your original claim might be true – California requires many dumb & anti-privacy things, sometimes in dishonest ways! – the links you've forwarded provide more grounds to doubt your claim than support it. If it's truly a state legal requirement that overrides a user's explicit discard request for a full 10 years, that should be easy to document with a clear and authoritative link, shouldn't it?
- Dig1t 3y agoI am trying to google this but not finding much, do you have any sources or references I can read? I would really love to learn more about this if that's true..
- dannyw 3y agoYep https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not-for-me/ https://stanforddaily.com/2018/10/17/me-asl-23-and-me-is-not...
- gojomo 3y agoAs noted in my other reply (https://news.ycombinator.com/item?id=38604877 https://news.ycombinator.com/item?id=38604877), this link doesn't actually support the strong claims made: "California requires", "with name and PII", "for 10 years", & that you "cannot request for this to be deleted or destroyed by law". Those all seem to be misinformation without support from, and even in contradiction of, public/authoritative references – despite the assertion that these are a matter of "law".