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To me it can make the difference from dreadful and tedious to pure delight. Yes. My wife worries a lot about this; she was worried that her 16,000-word, three-
by jseliger 3y ago
To me it can make the difference from dreadful and tedious to pure delight.
Yes. My wife worries a lot about this; she was worried that her 16,000-word, three-part essay guide on how to find clinical trials, and what the process was like for us (https://bessstillman.substack.com/p/please-be-dying-but-not-too-quickly https://bessstillman.substack.com/p/please-be-dying-but-not-...) would be too long and peculiar. Instead, it's found a wide audience, and perhaps most vitally, she's gotten a lot of great emails and comments from readers. Astral Codex Ten in particular has great readership. I'm not sure whether she's forged meaningful relationships that way yet, but the potential is there.
And if some people are put off by the peculiarities and quirkiness, so be it. To be for everyone is close to being for no one, as you mention.
- sebmellen 3y agoHey Jake, good to see you are still here! I’ve been following your story from afar and it’s wild to see a comment from you on HN. Hope all is (as) well (as can be) given the circumstances!
- sizzle 3y agoReading your journey and the beautiful writing by your wife and sister(?) was absolutely gripping. I donated what little I can to the cause. I truly hope the pharma research world can help you out. Cancer has affected too many people in my life.
- jseliger 3y agoThank you! Much appreciated. Cancer has affected too many people in my life I'm obviously interested in prolonging my own life in order to spend more time with Bess, but the prospect of helping advance science, in however tiny a way, is also attractive. In 2020 I signed up for an organization that sought to do human challenge trials. I would've happily taken a vaccine and then been exposed to covid for the sake of ending the pandemic sooner.