3 ms·
It sounds like the system isn’t designed to enrol patients this way, via a systematic patient-driven search. Instead, it’s probably designed to identify and fun
by lars512 3y ago
It sounds like the system isn’t designed to enrol patients this way, via a systematic patient-driven search. Instead, it’s probably designed to identify and funnel eligible local patients in. From the prospect of the clinicians involved, they only need to fill the trial.
- imglorp 3y agoThe system also appears to select for candidates with an organized, informed, highly motivated, support network. The patient the article was fortunate to have a full-time physician in their family to run the search, because nobody's doctor has weeks to spend on getting one patient into a study.
- BadCookie 3y agoRight. Most clinical trials don’t work out. Even the ones that do often involve a placebo group. Participating in a trial is probably most suitable for someone interested in altruistically helping to advance medicine. Expecting to get a personal benefit from participating is probably misguided thinking in most situations, unfortunately. [Edited]: I should clarify that I mean phase 1/2 trials where there’s no efficacy data yet in humans. Phase 3 is a different matter.
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- BHSPitMonkey 3y agoThe current approach does not seem suitable when dealing with rare conditions where the best patient/trial matches are geographically sparse. Efficient matchmaking would make this process far less taxing and miserable for the patients and families looking for options, even if the speedy answer is "sorry, but all the spots have already been filled with eligible patients in closer proximity to us".