3 ms·
This makes perfect sense to me. I have a genetic disorder and there is a phrase -- "the normal progression of CF" -- which essentially means "Quit bitching abou
by DoreenMichele 3y ago
This makes perfect sense to me. I have a genetic disorder and there is a phrase -- "the normal progression of CF" -- which essentially means "Quit bitching about wanting your doctor to actually help you get better. You have a sentence of death. Just politely die on time instead of pointing out that if we don't ever try to get you better, it should be no surprise when we don't."
Recently in the news for lifesaving drugs that cost $330k annually for the rest of your life and also make you hella fat. But let's focus on the positive: You might be allowed to live now.
- waihtis 3y agoSuch a horrible state of things. This is one area where I'm hopeful about using AI for healthcare - AI, by programming, wouldn't be able to be apathetic which seems to be a defining characteristic of many healthcare professionals. Now we only need to program the spirit of the AI to focus on healthspan instead of disease management..