3 ms·
You'll need to reach out to the study authors with a request. If they are interested (you're going to publish something noteworthy with a citation for them (low
by misterdad 3y ago
You'll need to reach out to the study authors with a request. If they are interested (you're going to publish something noteworthy with a citation for them (low chance), you want to bring them in on some funded research (better chance), etc) then they'll push it to their Institutional Review Board (a group of usually faculty and sometimes administrative staff at a University/Hospital/Org) who will review the request, the conditions of the initial data collection, legal restrictions, and then decide if they'll proceed with setting up some sort of IRB agreement / data use agreement. Unless you're a tenured professor somewhere or a respected researcher with some outside group then you probably won't get past any of those steps. Even allegedly anonymized data comes with the risk of exposure (and real penalties) not to mention the administrative overhead (expense, time, attention) that you'll need to be able to cover the cost of through some funded research. That research, btw, will also need to be through some IRB structure. You can tap a private firm that acts as an IRB but that's another process entirely and most certainly requires fat stacks of cash. Legal privacy concerns, ethical concerns, careerism (nobody wants you to find the 'carry the two' you forgot so you can crash their career prospects), bloated expenses (somebody has to pay for all of that paperwork, all those IRB salaries, etc) and etc, etc, etc all keep reproducibility of individual data frozen. Even within the same institution. Within the same team! You have to tread lightly with reproduction.