3 ms·
> high licensing costs that they paid to .... drumroll.... The CF "Foundation" What are you talking about? The CFF invested in the research being done at Verte
by cowsandmilk 3y ago
> high licensing costs that they paid to .... drumroll.... The CF "Foundation"
What are you talking about? The CFF invested in the research being done at Vertex and then sold their shares in the investment. There are no licensing fees.
> made the drug unavailable to most patients
Where’s the data showing the majority of CF patients aren’t receiving Kalydeco or Trifekta?
- refurb 3y agoOutside of the US access to Kalydeco and Trifekta is quite limited. Last I checked only 8 of 13 provinces/territories in Canada pay for it, and only for children and adolescents - adults are excluded. The UK also refused to pay for it but I think that was resolved? Been a while since I checked.
- jamesblonde 3y agoThey pay now
- yread 3y ago> CFF invested in the research being done at Vertex and then sold their shares in the investment Maybe they should just rebrand to CF Investment Fund then. I thought it's a charity with a mission of improving the lives of CF patients not an investment vehicle that happens to invest into compounds around CF. I hope the patients who contributed to the charity and now can't afford the drug are happy with the rate of returns