2 ms·
My brother 12 years ago could have been you, as I read your comment. A double lung transplant and myriad complications later, and he passed on from this world.
by dclowd9901 3y ago
My brother 12 years ago could have been you, as I read your comment. A double lung transplant and myriad complications later, and he passed on from this world.
Reading your experience makes me so happy that people with CF are finally seeing a light of hope in their experiences. You do all the walks, donate the money, remind people this disease exists and it’s so destructive but it always kind of felt like science wasn’t throwing a lot of energy into CF, so I’m so glad to see this development. I’m so happy for you. I wish my brother could have had that chance, but I imagine, given his incredibly generous nature, he’d be just as happy for all the CF survivors today who now have a fighting chance.
- bdcravens 3y agoThe CFF has actually done a good job of taking the lead. They approach it in a very startup-like manner. Trikafta is one of the results of that effort.